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Essay of informed consent
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1. Henrietta Lacks’ faced several factors that contributed to the type of hospital care she was entitled to during her cancer treatment. A combination of race, social status, education, and the environment influenced how she was treated, ultimately leading to the taking of her cells. Henrietta and her siblings dropped out of school at a very young age. This had a negative effect on Henrietta later on in life because, her lack of education made it difficult for her to read and write. This prevented Henrietta and husband from working well paying jobs, and forced them to work more laborious, low paying jobs that did not require an education. Luckily when she became sick, John Hopkins offered medical services to patients who could not afford Henrietta lived during a time of racial segregation. Most patients who received treatment from the colored portion of John Hopkins Hospital could not afford their treatment, and received it for free. As a result, many physicians used colored patients for research more often than white patients. This was allowed during this time period because there were very few medical laws and policies developed to prohibit the use of patients for research. A combination of Henrietta being a person of color, and the lack of medical policies, made physicians feel that they had a right to take her cells without needing her consent because majority of research conducted was on people of color and low social Many would agree that informed consent is crucial to a person’s personal rights over their tissue. However, I feel that there is a greater impact in helping thousands of people even if that means disregarding the individuals right over their tissue. In the case of Henrietta, it was ethically incorrect to use her cells without her or her families’ knowledge, however if it were not done many medical advances might not have occurred. By donating Henrietta’s cells, regardless of her choice, many discoveries have been made in science that have helped the health of many people. Most people after having tissue removed, have no purpose or use of it anyway, so it might as well be donated to science where it will be used. Donating tissue to science does not harm the individual or the population it can only
In February 2010, author and journalist Rebecca Skloot published a book, "The Immortal Life of Henrietta Lacks," which included the stories surrounding the HeLa cell line as well as research into Henrietta Lacks' life. In 1951 a poor young black women, Henrietta Lacks was diagnosed with cervical cancer and at the time was treated in the “colored ward” or segregated division of Johns Hopkins Hospital. The procedure required samples of her cervix to be removed. Henrietta Lacks, the person who was the source of these cells was unaware of their removal. Her family was never informed about what had been accomplished with the use of her cells. The Lacks family has not received anything from the cell line to this day, although their mother’s cells have been bought and sold by many. This bestseller tells the stories of HeLa and traces the history of the cell while highlighting the ethical and legal issues of the research.
The Immortal Life of Henrietta Lacks by: Rebecca Skloot has a lot of themes, but one that is most relevant in my opinion is the racial politics of medicine. Throughout the chapters, there were examples of how Henrietta, being African American, prevented her from receiving the same treatment as the white woman sitting right next to her in the waiting room. The story begins with Henrietta going to Johns Hopkins Hospital and asking a physician to check a “knot on her womb.” Skloot describes that Henrietta had been having pain around that area for about a year, and talked about it with her family, but did not do anything until the pains got intolerable. The doctor near her house had checked if she had syphilis, but it came back negative, and he recommended her to go to John Hopkins, a known university hospital that was the only hospital in the area that would treat African American patients during the era of Jim Crow. It was a long commute, but they had no choice. Patient records detail some of her prior history and provide readers with background knowledge: Henrietta was one of ten siblings, having six or seven years of schooling, five children of her own, and a past of declining medical treatments. The odd thing was that she did not follow up on upcoming clinic visits. The tests discovered a purple lump on the cervix about the size of a nickel. Dr. Howard Jones took a sample around the tissue and sent it to the laboratory.
The Immortal Life of Henrietta Lacks tells the story of Henrietta Lacks. In the early 1951 Henrietta discovered a hard lump on the left of the entrance of her cervix, after having unexpected vaginal bleeding. She visited the Johns Hopkins hospital in East Baltimore, which was the only hospital in their area where black patients were treated. The gynecologist, Howard Jones, indeed discovers a tumor on her cervix, which he takes a biopsy off to sent it to the lab for diagnosis. In February 1951 Henrietta was called by Dr. Jones to tell about the biopsy results: “Epidermoid carcinoma of the cervix, Stage I”, in other words, she was diagnosed with cervical cancer. Before her first radium treatment, surgeon dr. Wharton removed a sample of her cervix tumor and a sample of her healthy cervix tissue and gave this tissue to dr. George Gey, who had been trying to grow cells in his lab for years. In the meantime that Henrietta was recovering from her first treatment with radium, her cells were growing in George Gey’s lab. This all happened without the permission and the informing of Henrietta Lacks. The cells started growing in a unbelievable fast way, they doubled every 24 hours, Henrietta’s cells didn’t seem to stop growing. Henrietta’s cancer cell grew twenty times as fast as her normal healthy cells, which eventually also died a couple of days after they started growing. The first immortal human cells were grown, which was a big breakthrough in science. The HeLa cells were spread throughout the scientific world. They were used for major breakthroughs in science, for example the developing of the polio vaccine. The HeLa-cells caused a revolution in the scientific world, while Henrietta Lacks, who died Octob...
The Immortal life of Henrietta Lacks is a book about the women behind the scientific revolution of using actual cancer cells to perform cancer research. Henrietta Lacks was an African American woman who was barely educated and worked as a tobacco farmer. At the age of thirty she was diagnosed with cervical cancer. In Lacks’ time being uneducated, African American, and a woman was not a great mix. They were often undermined and taken advantage of. When Lacks started to become very ill she went to the nearest hospital that would accept black patients. There the doctor, George Gey, misdiagnosed her illness and took a tissue sample without her consent. After suffering through her illness and trying to keep up with her five children Henrietta died
Without them, we would be decades behind because the average person would not find signing away a piece of their body acceptable. Skloot brings up a case where a man sues a scientist for doing research on his removed spleen without his consent. The author states that those in favor of research said it “…would ‘create chaos for reseachers’ and ‘[sound] the death kneel to the university physician-scientist’. They called it ‘a threat to the sharing of tissue for research purposes,’ and worried that patients would block the progress of science by holding out for excessive profits, even with cells that weren’t worth millions…” (203). The concern shown from the quote was that with extensive limitations on research and tight ethical codes, the information found would be inadequate at best. On one hand, you do need to be honest with the patient, but for the cost of so many lives, there needs to be a balance of creating breakthroughs and appeasing those who matter in the situation. In regards to Henrietta, she did sign a document to have any medical procedure done that was deemed necessary by her doctors. With that being said, she did unknowingly give away some of her rights as a
Skloot mentions several cases where doctors hurt people with their actions. One of which occurs during one conversation between Henrietta and Sadie; “Hennie” shows Sadie her stomach which is “burnt… black as tar.” Henrietta says the cancer feels like the blackness “be spreadin all inside” of her (48). To build factual evidence of the corruption, Skloot directly quotes Sadie in order to ensure the event really took place. She uses logic to connect the factual side effects of cancer treatment to the imagery of tar. She effectively communicates the terrible job the doctors do to treat Henrietta. The blackness of Henrietta’s skin represents the blackness in the medical system. Skloot knows that people want to get better, and if the medical system continues to stay flawed no one ever will. Another case in which doctors treated patients inhumanly involves Henrietta’s eldest daughter. Skloot writes, “Elsie Lacks [died from] respiratory failure, epilepsy, [and] cerebral palsy” (270). All of these ailments occurred in a supposed hospital, meant for the mentally disabled. Skloot uses facts to help the reader logically follow the horror story of the Lacks family. She spells out exactly what doctors put Elsie through and helps to illuminate the terrible state of the medical world at that time. She uses fact as undisputed tributes of knowledge to back her claims, and to make them appear undeniable. Skloot emphasizes the terrible failure of the
Most people live in capitalist societies where money matters a lot. Essentially, ownership is also of significance since it decides to whom the money goes. In present days, human tissues matter in the scientific field. Rebecca Skloot, author of The Immortal Life of Henrietta Lacks, shows how Henrietta Lacks’s cells have been used well, and at the same time, how they have been a hot potato in science because of the problem of the ownership. This engages readers to try to answer the question, “Should legal ownership have to be given to people?” For that answer, yes. People should be given the rights to ownership over their tissues for patients to decide if they are willing to donate their tissues or not. Reasons will be explained as follows.
This was the same time that Henrietta Lacks lived. Henrietta Lacks was an African American woman who went to the doctor because she had cervical cancer. Her cells were taken and are still alive in culture today (Skloot 41). Hence, her cells were nicknamed Immortal (Skloot 41). Although many, at the time, saw no issue with using a patient without consent issue with what?
There are rare cases, when society has to make the tough decision to overlook a person's basic rights for the good of the general public, Mary Mallon is one of these exceedingly rare cases. Mary Mallon was a carrier of Typhoid fever, because of this she was denied her way of life and her passion. Typhoid left an abysmal impression on Mary’s life, but she did not let let sickness define who she was. Mary left a lasting mark in her own subtle way, her life was more paramount than meets the eye, she opened the eyes of scientists all over the world and taught the world a near impossible lesson about never giving in.
Doctors often would not inform their patients of everything they were doing to them and they did most things without a patient’s consent. In the book, Henrietta was not aware of many of the things the doctors were doing to her. They took samples of her tumor without her knowledge. The treatments that were given to her had negative side effects that she was not made aware of. The doctors’ and researchers’ actions had similar effects on Henrietta’s family. The family was never aware that her cells were being used in laboratories or that researchers were making millions of dollars off of them. Even when the Lackses were made aware of the research being conducted on the cells, it caused the family a great deal of confusion and distress. When they finally found out about the HeLa cells, it was because a doctor wanted to take their blood to test for genetic markers. The doctors did not explain this to the poorly educated Lackses, who thought they were being tested for cancer. This miscommunication caused Henrietta’s family to panic, for they thought they were going to die just like Henrietta. On the other hand, on the national level, HeLa cells served as a platform for research about many diseases, including cancer and polio. The cells progressed the scientific research on genetics and diseases further than ever thought
The novel The Immortal Life of Henrietta Lacks, by author Rebecca Skloot is about a black woman whose cells were used by doctors to study medicine without her knowledge or her permission. Rebecca Skloot first heard of Henrietta Lacks when she was 16-years-old in her college biology class. Her professor, Donald Defler, mentioned Henrietta briefly during his lesson about cells. Defler talked about how Henrietta’s cells helped scientists learn all they know about cell and cell culture today, and allowed them to develop disease-fighting drugs to combat herpes, leukemias, influenza, hemophilia and Parkinson’s disease. Although Defler did acknowledge the fact that it was Henrietta’s cells who helped change the future of medicine, all Defler added was that she was a black woman. Skloot was unsatisfied with this information and she wanted to know more about Henrietta Lacks, such as “Where was she from?... Did she know how important her cells were? Did she have any children?” (Skloot 4). The problem was, though, that no one cared to find out anything about the person whose cells were famous all over the world. Most people, in fact, did not even realize that her name was Henrietta Lacks, and not Helen Lane. All people knew about this woman was that her cancerous cells were referred to as HeLa cells. Thus, Skloot’s purpose was to inform people around the world about the life of the woman whose
What is privacy? Well, it’s the state or condition of being free from being observed or disturbed by other people. In terms of information, it is the right to have some control over how one’s own personal information is collected and used. This is a right that has been inherently protected by the U.S Constitution, agreed upon by the Supreme Court, and yet, issues around this very topic arise every day. In The Immortal Life of Henrietta Lacks, the author Rebecca Skloot, addresses this issue in her story of the women behind the infamous HeLa cells. Her story shows that although privacy is a right that is inherently protected by the law, situations of injustice can still occur. Examples of this in the book include when Henrietta’s cells were given to Dr. Gey without any consent from Day, the situation in which Mr. Golde’s spleen was sold without his permission, as well as when the Lacks family were recontacted and mislead about the reasons they were tested years after Henrietta’s death.
This section is used to demonstrate to the reader the enormous effects of her death to both her family and science. Immediately following Henrietta's death, Dr. Gey is anxious to take as many samples from her body as possible. However, he must first obtain permission from her husband for an autopsy. Henrietta's husband, Day, is tricked into giving permission. He is told the autopsy will provide test results that may help his children in the future. During the autopsy, Gey's assistant Mary Kubicek takes notice to Henrietta's painted toenails and realizes that HeLa cells belong to an actual person. She says, "they came from a live woman" (Skloot 91). A few days after the autopsy, Henrietta's body is sent from Baltimore to Clover. Henrietta is buried a few days later in an unmarked grave alongside her mother in Lacks Town. Her death is swift and little mourning is conducted by the family. By placing this section second, the reader gains insight into Henrietta's family. Her children are treated poorly and her husband is absent most of the time following her death. This section is important in understanding and gaining insight into the people closest to
Nowadays, when patients are given consent forms, every step is explicitly stated so that there is no confusion or harm. All in all, Henrietta Lacks has contributed and made significant changes to the scientific, ethical, and political aspects of society.
The book The Immortal Life of Henrietta Lacks by Rebecca Skloot, was a nonfiction story about the life of Henrietta Lacks, who died of cervical cancer in 1951. Henrietta did not know that her doctor took a sample of her cancer cells a few months before she died. “Henrietta cells that called HeLa were the first immortal human cells ever grown in a laboratory” (Skloot 22). In fact, the cells from her cervix are the most important advances in medical research. Rebecca was interested to write this story because she was anxious with the story of HeLa cells. When she was in biology class, her professor named Donald Defler gave a lecture about cells. Defler tells the story about Henrietta Lacks and HeLa cells. However, the professor ended his lecture when he said that Henrietta Lacks was a black woman. In this book, Rebecca wants to tell the truth about the story of Henrietta Lacks during her medical process and the rights for Henrietta’s family after she died.