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Ethical issues in gene testing
Pros and cons of genetic testing ethics
Genetic screening vs privacy
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Looking at the different approaches of these two countires we can see how different methods can be applied concerning the genetics debate. The countries discussed could be said to stand on opposite sides of the debate, depending on whether or not you believe DTC testing is a practice of medicine. Because the DTC testing packages claim to be just a source of information, it is hard to prove them to be a practice of medicine. For this reason we will say Belgium accepts direct-to-consumer testing without the use of a physician, while France strictly prohibits it. Lastly, we will explore the argument behind direct-to-consumer testing and why it is a consumers right to know information about their health status without healthcare intermediaries. …show more content…
As stated above there are two approaches that can be used when talking about genetic testing. One approach is the utilitarian approach that believes the benefit of society as a whole is more important than an individual. DTC tests allow more people to be tested, which if they take the right steps afterwards could protect the society from a disease presented by an individual. Or the safe route for the society would be for people to do genetic testing at the discretion of a physician to assure they are making well informed decisions. The libertarian approach is another method that can be used. This puts the needs of the individual above the needs of the society as a whole. This method would support genetic testing either way, because both methods provide health information for the individual. The DTC approach gives the person more freedom throughout the testing process and allows them to maintain privacy if they choose …show more content…
I agree with the concept that it is our fundamental right to have access to our health information. I do not see an issue with allowing genetic to be done without the discretion of a physician. There have been a lot of arguments from both sides, but when it comes down to it, regulation eliminates the opportunity to choose to include a physician or not. If a person prefers to do DTC testing and receive information that is arguably not as valid, that is up to them. They still have the option of seeing a healthcare professional after receiving results or seeing a genetic counselor. For the people who believe testing should only be done through a physician, they can make sure to do it that way. Just because some people do not prefer the DTC method, does not mean it needs to be eliminated all together. It all comes down to the fundamental right to know information about your health and how DTC testing protects autonomy and
... Health Information Privacy For Consumers. Retrieved April 22, 2009, from U. S. Department of Health and Human Services: http://www.hhs.gov/ocr/privacy/hipaa/understanding/consumers/index.html
Guidelines like these need to be formed into a federal law that people can pass in one way or another so that we can be protected from the various forms of discrimination that is possible with this kind of information. The public should be aware of what could happen if this kind of information could become public knowledge, and of the opportunities that the knowledge brings. There is no doubt that the information from genetic analysis is going to help a lot of people with all sorts of problems live longer and healthier lives. The only problem is that we have to keep the information in the hands of those who need it, and out of the hands of those who would use the information to profit or discriminate.
Advantages of genetic testing may be helpful in determining whether or not you have a disease or are proba...
The patient should have confident and trust in their doctor, but the doctor must also recognize that the patient is entitled to have an attitude to illness and his preferred way of tackling this (Turner-Warwick, 1994). Buchanan infers that paternalism eliminates an individual’s power of making their own choices and thus pressed into making decisions. To achieve public health goals, greater considerations must be directed toward promoting a mutual understanding of a just society (Buchanan, 2008). So, if people are given the choice to make certain decision over another, then they are still granted freedom of choice. Buchanan identifies 3 arguments in justifying paternalistic actions: informed consent, weak paternalism, and utilitarianism. To support his argument of informed consent, Buchanan admits there is no significant ethical concern because an individual may reach out to the professional for help, but it is problematic when an intervention is targeting the entire population (Buchanan, 2008). This point of view from Buchanan is flawed and completely limits what public health is all about. The Institute of Medicine (IOM) defines public health as “what we, as a society, do collectively to assure the conditions for people to be healthy.” With its use of the phrase “we, as a society,” the IOM emphasizes cooperative and mutually shared obligation and it also reinforces the notion that collective
Teutch, S., & Tuckson, R. Department of Health & Human Services, (2008). U.S. system of oversight of genetic testing: A response to the charge of the secretary of health and human services. Retrieved from website: http://osp.od.nih.gov/sites/default/files/SACGHS_oversight_report.pdf
Robertson, L. (2008). Who’s looking at your medical records? [Electronic version] Saturday Evening Post, 280.3, 54-92, Consumer Health Complete.
Doctors, hospitals and other care providers dispute that they should have access to the medical records and other health information of any patient citing that they need this information to provide the best possible treatment for proper planning. Insurers on the other hand claim they must have personal health information in order to properly process claims and pay for the care. They also insist that this will provide protection against fraud. Government authorities make the same arguments saying that in providing taxpayer-funded coverage to its citizens, it has the right to know what it is paying for and to protect against fraud and abuse. Researchers both medical and none nonmedical have the same argument saying that they need access to these information so as to improve the quality of care, conduct studies that will make healthcare more effective and produce new products and therapies (Easthope 2005).
Genetic testing has been a very controversial topic. While some people believe that genetic testing is completely right in any situation, others believe that it is completely wrong in any situation. However, both sides prove valid points of why genetic testing is both right and wrong. Genetic testing can be very good when it is being used for helpful reasons. However, genetic testing can also be very bad when it is used for the wrong reasons. Genetic testing is okay to do as long as it is being done for the right reasons and following good moral guidelines.
The Human Genome Project is the largest scientific endeavor undertaken since the Manhattan Project, and, as with the Manhattan Project, the completion of the Human Genome Project has brought to surface many moral and ethical issues concerning the use of the knowledge gained from the project. Although genetic tests for certain diseases have been available for 15 years (Ridley, 1999), the completion of the Human Genome Project will certainly lead to an exponential increase in the number of genetic tests available. Therefore, before genetic testing becomes a routine part of a visit to a doctor's office, the two main questions at the heart of the controversy surrounding genetic testing must be addressed: When should genetic testing be used? And who should have access to the results of genetic tests? As I intend to show, genetic tests should only be used for treatable diseases, and individuals should have the freedom to decide who has access to their test results.
Situations like Jacob's are now a relatively common with the advent of genetic screening. People can now look into their genetic make up to find out if they carry a deleterious gene or genetic predisposition to a disease. No longer must many people with high risk families worry about whether or not they may contract the same disease as their ancestors. Diseases and disorders such as Huntington chorea, Alzheimer's, Multiple Sclerosis, Muscular Dystrophy, Hemophilia, and some kinds of cancer such as breast, colon, thyroid, ovarian, and skin can now be identified on a particular gene and can likely predict the probability of disease onset. But with this technology comes many physiological and ethical problems. Within this paper, I will define genetic screening, look at the controversial ethical viewpoints, and give a brief overview to this situation.
In today’s world, people are learning a great deal in the rapidly growing and developing fields of science and technology. Almost each day, an individual can see or hear about new discoveries and advances in these fields of study. One science that is rapidly progressing is genetic testing; a valuable science that promotes prevention efforts for genetically susceptible people and provides new strategies for disease management. Unnaturally, and morally wrong, genetic testing is a controversial science that manipulates human ethics. Although genetic testing has enormous advantages, the uncertainties of genetic testing will depreciate our quality of life, and thereby result in psychological burden, discrimination, and abortion.
Genetic testing, also known as screening, is a rapidly advancing new scientific field that can potentially revolutionize not only the world of medicine, but many aspects of our lives. Genetic screening is the sequencing of human DNA in order to discover genetic differences, anomalies, or mutations that may prove pathological. As genetic screening becomes more advanced and easily accessible, it presents society with difficult questions that must be asked about the boundaries of science and to what degree we are allowed to tamper with the human genome. To better understand the potential impact of genetic screening on our society, we must examine the potential benefits in comparison to the possible negative impact it may cause. With this knowledge in hand, we can examine what the future holds for this field of study and the best possible direction to take.
First of all, I want to start by saying that I 'm not discriminating the disabled community, but this is a very large number that could possibly be diminished with the help of genetic testing. (1) I believe that there is nothing wrong with testing the genes of an unborn child to possibly determine if it could develop a genetic disorder in the future. One of the advantages that genetic testing provides is that the parents could now be informed of the situation, and keep track of their unborn child 's health. I 'm sure those parents are pleased with this technology, and the chances to be able to keep track of their baby. This a baby, and is something very precious, and valuable, and I believe that parents want to keep track of anything that may happen with the unborn child. I 'm sure that a large amount of people would agree would agree that they don 't want to suddenly take the hard hit. When the news is presented in the delivery room. This serves more as an advantage than a disadvantage, due to the fact parents. Pull be more prepared, or possibly have the option to abort it. This is a right that the parents should have regardless of the opposing side arguments towards it. Im a hundred percent sure that the opposing side has very strong arguments towards genetics testing, and one of the main ones is "playing God." The opposing side believed that some things in
There will always be a need for healthcare as people are always sick in some way or they are out of balance with their health in some way. There are so many specialty areas in the healthcare field that it allows for a variety of specialists to be apart of a patient’s decision making process. It does pay to be knowledgable. Take the time to read each one of the patient’s rights and under-stand what it means to have a choice.