Carole's Journey Through the Health Care System after a Cerebrovascular Accident

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Carole Lauren is a 44 year old mother of two, a wife, and a school teacher by profession. Her story began 21 months ago when she had a cerebrovascular accident that left her hemiplegic. Almost two years passed since the event. Carole regained most of the lost function in her left leg, ankle, and foot. However, she still has limited function in her left arm and hand. She also has difficulty organizing her thoughts and read her message from a paper. Her story is about a journey through the health care system. Since the stroke, Carole has received care from multiple healthcare providers - some were better than others and she met many great people, but her overall care experience “could have been much better in many different ways”. Carole noticed while in the tertiary care how the staff seemed to be overworked. She also felt that they did not talk to each other and when they did, she felt left out and her opinions were not considered. Her primary care physician was not informed of Carol’s progress, neither did she know about any post-stroke support. Physiotherapy waiting list was extremely long. On multiple occasions she could not tell her care providers about each other for fear of repercussions. This eventually led to two uncoordinated treatment plans, as they “were not funded” to talk to each other. As I was listening to Carol’s story, I realized that her story is one of many patients. Sure, she was lucky that her husband had advocated on her behalf when she was most vulnerable and she took over once she could but how many people could not? Juggling only two balls in the air becomes tricky once we name them “patient care” and “budget”. If we were to place Carol in an ideal hospital, would she have had the same expe... ... middle of paper ... ... and explain complicated medical stuff in lame terms. It could also help with inter-professional communication because the specialists would only need to work with the coordinator and not worry about ten other professionals which can understandably be very time-consuming. Carol finishes her story with a plea for a better communication among the different healthcare providers and the system in general. There is no perfect system, and health care, the system that constantly evolves, deals with life and death, and employs people to fill such diverse niches is probably the most complex of them all, the most difficult to assess, comprehend, and change. As big, complex, and sometimes scary as it seems, it can be changed: talking to a colleague, taking a moment and asking a patient’s opinion. “Be the change you wish to see in the world”, said Gandhi. This is my motto.

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