Our mission is to provide the valuable information about BWS from the initial diagnosis throughout the child’s life.
WHO WE ARE
Beckwith-Wiedemann Children’s Foundation Int’l (BWCFI) has been educating and assisting families diagnosed with BWS since 1998. Our mission is to provide the correct information about BWS –at the initial diagnosis and throughout the child’s life.
BWCFI’s primary purpose is to provide educational and reference resources for families and individuals diagnosed with BWS. However, we can provide some of the following additional services as requested to families on an “as-needed” basis.
Travel assistance for BWS-related surgeries
Referral to physicians, professionals and medical facilities experienced with BWS.
Financial
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This DVD has been made possible by a donor that continues to fund the project by providing free worldwide postage. Fill out our contact form request your copy. DVDs are mailed out each month.
Click here to support BWCFI. Donations are appreciated, and thank you for your support
Beckwith-Wiedemann Children’s Foundation International is located in Portland, Oregon eckwith-Wiedemann Children’s Foundation International is a non-profit 501(c)(3) corporation headquartered in the state of Oregon. Donations are tax deductible to the full extent allowed by
I am writing you because I was informed that you have a child with the Prader-Willi Syndrome (PWS). I have recently been researching this disorder and want to give you some information about it that you may not yet know and suggestions that may help in maintaining your child's health and safety.
Have you ever heard of a disorder, condition or disease for the first time wondering to yourself what it is? That was me 11 years ago when my baby girl was first diagnosed with Alpha-1 Antitrypsin Deficiency, at the young age of only four months old. My heart dropped when they told me the diagnosis even though I had no idea what it was, what is meant, or how it would change our lives. I had so many questions and even to this day, the questions still seem endless. I have spent countless hours researching and asking questions trying to fully understand what it all means. As I continue to hope and pray for a cure so my daughter can live a normal long healthy life. Although there is currently no cure for Alpha-1, recent discoveries in Stem Cell research offer hope that there could be one in the future.
Berkowitz, Carol. American Academy of Pediatrics: Dedicated to the Health of all Children. American Academy of Pediatrics. 8 Dec. 2004
McMillan, Julia A., Ralph D. Feigin, Catherine DeAngelis, and M. Douglas Jones. Oski's Pediatrics, Principles & Practice. Williams & Wilkins, 2006.
With Stage 2 Meaningful Use the amount of data collected on patient’s increases as well as its use for coordinating and communicating care with the patient and other providers.
Let’s first review all the diagnoses and findings that were made by the experts that examined the diary.
The Trevor Project. Retrieved from http://www.thetrevorproject.org/section/resources.
I will keep the knowledge I have learned from this article and take it into consideration when in practice. I would love to advocate on behalf of the children and work to stricken the diagnostic criteria for all the children’s diagnoses, in efforts to reduce them from being labeled with mental disorders that they may not exist.
First Vintage Contemporary Edition. March 1992. 10 Nov 2010. Thomson, Jeff. A.
Imagine a couple who has just found out that they are pregnant. Just like other parents, they want nothing more than to have a happy, healthy baby. Last year, these parents were my neighbors. Although they did not know it, their daughter Kelsey was going to be born with spina bifida and have no feeling in her lower left leg because of it. Most people have never even heard of spina bifida or know what it is. According to the Center for Disease Control and Prevention, “Each year, about 1,500 babies are born with spina bifida” (“Data and Statistics”). This is a problem and it should not go unnoticed. We need to educate people on the importance of this defect and what can be done about it.
Since 2011, I have been working as part of the Community Living Services Children’s Team at Phoenix Human Services Association. I provide direct support to children and youth, ages 6-19 years old, who have been diagnosed w...
The general design of this study was quasi-experimental because the researchers introduced the BAEW program as a manipulation and comparison conditions between the intervention group and control group were present, but there was no randomization. A 16-question survey regarding overall health was administered to the children
Lucile Packard Children’s Hospital Stanford was the first public institution to start a PANS service in 2012. We hosted the first national PANS consensus conference in the spring of 2013 where we worked to create clear diagnostic guidelines. The second PANS consensus conference was held at the National Institutes for Health in May 2014, which commenced the development of preliminary treatment guidelines. In addition, we have created a database and biorepository, and a team of epidemiologists and scientists who are studying clinical data and molecular mechanisms.
DuRant, Robert H., PhD Department of Pediatrics, Brenner Children's Hospital, Winston-Salem, North Carolina- AUGUSTA FREE PRESS
Shorter 8th ed. of the book. New York: Norton, 2013. Print. The.