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Raising a disabled child
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Article Review
Summaries of articles
In the article, Working with Families: Rethinking Denial, “in denial” was believed to be the action of parents failing to accept their children’s disabilities. The term “in denial” originates from Kubler-Ross (1969). It refers to the stages of grieving: denial, anger, bargaining, depression, and acceptance (Kubler-Ross, 1969). The connection to disabilities and grief is that they both involve the stages of acceptance, in which, they are expected to reach that final stage. When parents discover that their child will consider different the ideology of perfection is replaced with fear of the unknown. Parents may experience their own form of grief, Howard, Williams, Port, & Lepper (1997), made the suggestion
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Many families are expected to accept and process the information that they are given the same way as the professional that is working with them. It is important to take the family’s feelings and emotions into context when presenting them with the limitations that their child will experience in their life. A professional’s perspective can come off as judgmental and this can result in a lack of interest in the hopes that parents have for their children. The difference between parents and professionals when working together is that professionals see the diagnosis as a stepping stone for the work that will be needed for the child. Some parents have multiple children, jobs, and other responsibilities that can hinder them from spending long hours doing activities that therapists and other professionals suggest to them (Fialka, 2000). It is important to not pass judgment on families when they challenge the suggestions but to take into perspective how the family is feeling. According to Gallagher, Fialka, Rhodes, & Arceneaux (2002), some suggestions for professionals are: show support to families’ wishes for their child, suppress judgmental behavior, be patient, use the time that it takes for the families to get acclimated to build trust, and educate other professionals and families …show more content…
It is an emotional rollercoaster for families and sometimes their reactions to the news can be misinterpreted for something completely different. Professionals can be very overbearing in some cases because they don’t need the time to accept what is taking place. The comparison of grieving to disabilities is understandable only because of the stages that families can experience when they are informed that their child will be experiencing hardships. Acceptance is difficult when parents have the connotation that their child is “normal” in a sense. The ideology of having “the perfect child” can seem like a death for some families when they have to come to terms with their child’s disability. Working with professionals can seem overwhelming to most families because they have to collaborate and brainstorm with multiple people to gain an understanding of the situation that they are facing. Professionals can learn from parents and vice versa; feelings are real and emotions are real so they should be respected and accepted when dealing with a stressful situation such as disabilities. This affects the field of child and family studies because sometimes it is easy to become judgmental of families without taking into context the level of stress that families are facing. This information will be
Due to this disease the body is slowly broken down by affecting the central nervous system of a person’s body. The children depicted in the essay are probably an example how fellow human beings should be around a disabled person. They just view the disabled person as another human being and respect them the same way. The children are proud to associate themselves with Mairs and do not shy away from introducing her to the general public. This is what a disabled person requires: that all those around him or her should respect them for what they are and give them unconditional regard
Chapter thirteen has two subject matter that it discusses in some detail, mental illness and developmental disabilities. This review will be exploring the history, philosophy and theories of developmental disabilities. Social workers come in contact with many clients that have developmental disabilities, and the chapter gives a glimpse the history, problems, and theories related to developmental problems. Chapter thirteen explores the issues of dealing with developmental disabilities in the past and what is being done today to help social workers face the issues.
4. Other life stressors – the child with ASD is not the only stressor the family is facing in Let Me Hear Your Voice. The article suggests that it is important for a clinician to take these stressors into account when working with a family. Clinicians are potentially able to assist with the other stressors in a family’s life by providing referrals and other appropriate suggestions.
Unfortunately, a lot of parents may have a difficult time accepting their child, and coping with their needs and the responsibilities. From the book “The Elephant in the Playroom,” some families dealt with depression and physical and mental deterioration of their health. These struggles were shown in the story by Laura Cichoracki. Laura’s son’s name was Patrick. Patrick was a 6-years-old boy with autism. “I wasn’t eating right, I wasn’t showering regularly, I wasn’t sleeping well” (Brodey, p. 64). I also read the story told by Susan Marrash-Minnerly, which highlighted emotions that parents face. Susan also shed light on how wonderful children with special needs can be to a family, such as her ten-year-old third grader who had autism. Susan talked about how it was normal to feel angry at times, especially with the ups and downs a child’s disability may come with. “When I look back, I want to tell other parents that a child’s future is worth grieving over – but it’s not the end of the world” (Brodey, p. 75). After reading these stories, it became apparent to me that families who are raising kids with special needs, need support, kindness, and available resources. “I was fortunate to be surrounded by other moms who understood my pain…who could be supportive and emphatic.” (Brodey, p. 67). Overall, educators can use this kind of information that was shared in “The Elephant in the Playroom” about family systems and risk/resiliency by creating lines of open communication between families. This is to connect parents together that share similar struggles. By creating open communication is can allows for the teacher and parents to be on the same page when it comes to the issues affecting special needs students and
At any one point, as a family, we were in denial, we were angry, or we were depressed. And there was conflict. We disagreed with the doctor’s findings. We didn’t always agree with each other on a course of action. It was a confusing time.
In the article the authors stress the difficulties that disabled people run into when attempting to deal with grief. They find it critical that caregivers realize that people with disabilities very well may grasp the notion of death, and the various changes that loss may bring. Also brought up is the fact that the disabled population may not show the normal symptoms of grieving, or any symptoms at all. They stress the importance of awareness of these differences in spite of limited communication which in turn can lead to more problems with the grieving individual.
During the stage of denial, one is unwilling to accept what happened as evidenced by David W. Moore, “They refuse to accept the validity of the prognosis”
Living with a child with special needs can have profound effects on the entire family including the extended family members, siblings, parents, and the child with the special needs. It can affect all aspects of family functioning, since they have to be on the watch for the child. On the positive side, living with a child with special needs can expand horizons, develop family cohesion, increase the family members’ awareness of their inner strength, and promote connections to community groups. On the negative side, this child will need time, physical and emotional demands and financial cost in order to make the child’s life comfortable. However, the impacts will depend on the child’s condition, and its severity, as well as the emotional, physical, and the financial resources available to take care of the child.
Respect the differing needs that parents and carers themselves may have such as a disability or communication or linguistic
The article emphasizes the importance that at this age, the family and parents pick the goals for their children. The plans are tailor fit to meet the goals of the parents for their children. An example that the article used was a child may not be able to pick up food to finger feed, which could be identified as the family as an issue. The family and the occupational therapist work together to meet this goal. The piece concludes by reemphasizing that families are the key to the success that the child will have through the Early
As a parent, learning that your child has developmental disabilities can be a life-altering moment in time and can cause a devastating chain reaction of events. These events have the potential to change family priorities and structure, hurt relationships, deplete financial savings and stability, and emotionally drain everyone intimately involved with you and your child. How do you find human services programs, agencies, or advocates, whose primary job is to help you provide everything your child needs? It certainly can be an overwhelming barrier, but it's the first step in giving you, your child, and your family a plan of action, goals, success, good mental health, and bringing everyone back together. What are Developmental Disabilities?
In countries with life expectancies over 70 years of age, people spend on average about eight years, or 11.5 percent of their life span, living with disabilities. The passage "A Giant Step” by Henry Louis Gates Jr is a memoir about how he came to injure his foot, and all the complications that went along with the permanent injury. Similarly “The Absolutely True Diary of a Part-Time Indian” is a story about a teen named Junior who has hydrocephalic, we learn the many complications that come along with this disability. There are similarities and differences in how both people live their lives. Both people with their disabilities find it within themselves not to give up and still overcome challenges. On the other hand both mothers aren't the same, their motives for their children are completely different. Junior was also able to live a little more normal life, have freedom meanwhile Gates was held back a little more from
False beliefs conclude that these children would have fixed lives because of the parents disabilities and in order to prevent this we must separate families. Studies show that children’s destinies are not fixed by having parents with a disability (Powell 2016). Their experience in their adult life were similar to other peers of the same social class and neighborhoods (Field,Sanchez 1999). Their ability to strive in school or leave was also not based on their parents disabilities (Booth 1997). In fact children with parents with disabilities have been shown to foster protective resilience factors, such as personality characteristics, responsiveness to others and an outgoing nature (Booth 1997).
Raising a child with a disability may have some difficulties and challenges but it will have a lot of rewards; just as having a normal child. A parent want their child to live a normal fulfilling life as any other normal child. This life style will take extra patience, time and adaptive equipment and a special person to do it. When accepting that your child has a disability it is good to get all the literature on that type of disability. This will help you understand your child’s disability. A parent involvement is needed to find support groups, so they can get some insight on things someone from the support group has done to get certain things accomplished.
A child with a mental or physical disability may not be able to think, work, play, and function like other children of the same age. Someone working in the special needs career will be able to assist these children to function in their everyday lives and to meet goals to encourage them to thrive. In order for someone to work with special needs children, they need to understand the factors involved in a child’s improvement, have a heart for helping others, and be properly educated and trained.