Struggles of Trichotillomania: A Personal Journey

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My Bad Hair Life

I don’t remember exactly how or why it started. I was in the tenth grade when I began methodically pulling out my hair strand by strand. I’d search for a strand that felt thick, coarse, kinky, and bent, as though it did not belong in my smooth mane of hair. Running my fingers through my hair, I would locate a single hair and pluck it from my head. It never hurt, at least not initially. In fact, it felt good. The sensation in relieving myself of the built up tension felt prior to pulling, the ‘pop’ that occurred when I had known I had plucked the follicle from my scalp – it felt good. Albeit, that joyous, feel-good moment was fleeting. So I did it again, and again, and again, but no long-lasting joy came of my pulling. And …show more content…

I thought it was a curious, strange phenomenon that was unique to me. I felt alone in my behaviour. There was no way I would have ever believed that others were enacting the same strange behaviour as I. Though, I felt some comfort in this self-diagnosis too. I could attribute my behaviours to a force outside of myself – as though I couldn’t help myself, I was just ‘wired’ that way. While it was comforting to know there was a name for this struggle others and myself were faced with, I still felt alone and removed from this community of others facing trichotillomania.

Researchers have estimated the prevalence rate to be between 1-3% across the developmental lifespan. However, this is likely a modest estimate. Shame and embarrassment are among the greatest affects of this disorder, often preventing people from being ‘out’ with their disorder, or from seeking treatment. Unfortunately, not much is known about trich and there is no …show more content…

I want to feel understood more than anything. Educate yourself about trichotillomania. I don’t want you to feel disgusted by me because I am already disgusted by my behaviour. Don’t use phrases like, “I’m so OCD” – this diminishes the very real reality of mental disorders. Don’t call me out when you catch me in the act because I already know what I am doing. If I could stop, I would. Be sensitive – navigating this terrain is like navigating land mines. I don’t know what is going to hurt me or when because some days are better than others. Please don’t offer unsolicited advice. I am not crazy - I am smart and self-aware, and I am always working towards becoming a better person, and that includes my efforts to reduce and control my urges to pull. If I feel safe enough to share my disorder with you, please don’t disclose this information to anyone else. If we are close friends, offer to help me with my hair. I can’t see the back of my head and strategically concealing my bald spots is a challenging art. If you are my lover, ask to run your fingers through my hair – it’s been so long since I’ve allowed another to play with my hair. Acknowledge my struggle and tell me I am beautiful and strong. When I’m going through a pull-free period, congratulate me when I tell you I haven’t pulled all morning, or for three days, or 1 year. It is a constant effort to fight against the urge to pull, but I am making progress. Today marks 64 days pull-free. I will never be

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