Background of Story
The Immortal Life of Henrietta Lacks is a true story of a poor, Southern African-American tobacco farmer who died in 1951 at the very young age of 31 years old from cervical cancer. Little did she know that cells harvested from her tumor, which were obtained without her consent have lived on and on and became one of the most important tools in medicine today. Despite Henrietta’s story being full of legal and ethical issues, the story was one filled with success and anguish. Success for science as her cells served as advancement in medical research and development; yet was sorrowful for Henrietta and her family. This story occurred during a time of segregation in the United States, when Henrietta Lacks believed she was receiving the best possible treatment for her illness. Unfortunately, at this point in time doctors believed radium treated cancer, which we know today can actually increase the risk for cancer and cell research was just beginning in medicine. The journey of Henrietta started with her medical treatment occurring on a “colored” ward at John Hopkins Hospital in the 1950’s and ending in a white laboratory where freezers sit full of HeLa cells; now today, her children and grandchildren live in East Baltimore and still struggle with the legacy of her cells.
Henrietta’s tumor cells were taken from her body and given to a scientist named George Gey. Her cells were the first to live and grow outside of the body for an extended period of time, and they are still alive today, though she has been dead for more than sixty years. The name adopted was HeLa cell, yet Henrietta Lacks remains essentially unknown and is buried at an unmarked grave site next to her mother. These cells were vital in develop...
... middle of paper ...
... good of science and humanity and to that we owe her respect.
References
National Institute of Health Belmont Report (1979) Retrieved November 5, 2013 from http://www.hhs.gov/ohrp/humansubjects/guidance/belmont.html.
NBC News. NIH Finally Makes Good With Henrietta Lacks‘ Family – And It’s About Time. Retrieved November 5, 2013 from http://www.nbcnews.com/health/nih-finally-makes-good-henrietta-lacks-family-its-about-time-6C10867941.
Skloot, Rebecca. The Immortal Life of Henrietta Lacks. New York: Random House, 2010.
The Scientist. Retrieved November 5, 2013 from http://www.the-scientist.com/?articles.view/articleNo/36098/title/Debating-Bioethics-Openly/.
United States. Summary of the HIPAA Privacy Rule. U.S. Department of Health and Human Services. Retrieved November 5, 2013 from http://www.hhs.gov/ocr/privacy/hipaa/understanding/summary/.
All I can say is amazing information of your glorious and late Henrietta Lacks. This incedible women bettered our society in ways no common human could understand at the time because of how complex this matter was and still very much indeed is. I know there is much contraversy with the matter of how scientists achived immortal cells from your late relative, and I do strongly agree with the fact that it was wrong for these researches to take advantage of this incredible women, but I know it is not for me to say nonethless it must be said that even though it was wrong to take Lacks’ cells when she was dying sometimes one must suffer to bring joy to the entire world.
The book The Immortal Life of Henrietta Lacks by Rebecca Skloot is the result of years of research done by Skloot on an African American woman with cervical cancer named Henrietta Lacks. Cells from Lacks’ tumor are taken and experimented on without her knowledge. These cells, known as HeLa cells, are the first immortal human cells ever grown. The topic of HeLa cells is at the center of abundant controversial debates. Despite the fact that her cells are regarded as, “one of the most important advancements in the last hundred years” (4), little is actually known about the woman behind the cells. Skloot sets out on a mission to change this fact and share the story of the woman from whom the cells originate and her family as they deal with the effects these cells have on them.
In this paper, I will analyze Rebecca Skloot’s book, The Immortal Life of Henrietta Lacks, concentrating on Henrietta Lacks’ life, as well as ethical controversies and sociological impact surrounding the HeLa cells. First, I will discuss the author’s main arguments and the type of evidence used throughout the paper. Then, I will summarize the life of Henrietta Lacks focusing on her diagnosis and treatment up to her death. After, I will describe the ethical debates that the author presented and how they relate to Henrietta Lacks and the HeLa cells. Finally, I will examine the impact HeLa cells have had on the society, specifically regarding the medical community, as well as the effect HeLa cells had on Henrietta’s family.
The Immortal Life of Henrietta Lacks by: Rebecca Skloot has a lot of themes, but one that is most relevant in my opinion is the racial politics of medicine. Throughout the chapters, there were examples of how Henrietta, being African American, prevented her from receiving the same treatment as the white woman sitting right next to her in the waiting room. The story begins with Henrietta going to Johns Hopkins Hospital and asking a physician to check a “knot on her womb.” Skloot describes that Henrietta had been having pain around that area for about a year, and talked about it with her family, but did not do anything until the pains got intolerable. The doctor near her house had checked if she had syphilis, but it came back negative, and he recommended her to go to John Hopkins, a known university hospital that was the only hospital in the area that would treat African American patients during the era of Jim Crow. It was a long commute, but they had no choice. Patient records detail some of her prior history and provide readers with background knowledge: Henrietta was one of ten siblings, having six or seven years of schooling, five children of her own, and a past of declining medical treatments. The odd thing was that she did not follow up on upcoming clinic visits. The tests discovered a purple lump on the cervix about the size of a nickel. Dr. Howard Jones took a sample around the tissue and sent it to the laboratory.
The Immortal Life of Henrietta Lacks tells the story of Henrietta Lacks. In the early 1951 Henrietta discovered a hard lump on the left of the entrance of her cervix, after having unexpected vaginal bleeding. She visited the Johns Hopkins hospital in East Baltimore, which was the only hospital in their area where black patients were treated. The gynecologist, Howard Jones, indeed discovers a tumor on her cervix, which he takes a biopsy off to sent it to the lab for diagnosis. In February 1951 Henrietta was called by Dr. Jones to tell about the biopsy results: “Epidermoid carcinoma of the cervix, Stage I”, in other words, she was diagnosed with cervical cancer. Before her first radium treatment, surgeon dr. Wharton removed a sample of her cervix tumor and a sample of her healthy cervix tissue and gave this tissue to dr. George Gey, who had been trying to grow cells in his lab for years. In the meantime that Henrietta was recovering from her first treatment with radium, her cells were growing in George Gey’s lab. This all happened without the permission and the informing of Henrietta Lacks. The cells started growing in a unbelievable fast way, they doubled every 24 hours, Henrietta’s cells didn’t seem to stop growing. Henrietta’s cancer cell grew twenty times as fast as her normal healthy cells, which eventually also died a couple of days after they started growing. The first immortal human cells were grown, which was a big breakthrough in science. The HeLa cells were spread throughout the scientific world. They were used for major breakthroughs in science, for example the developing of the polio vaccine. The HeLa-cells caused a revolution in the scientific world, while Henrietta Lacks, who died Octob...
Sobel, R. (2007). The HIPAA Paradox. The Privacy Rule that’s Not. Hasting Center Report, 37(4), 40-50.
This was the same time that Henrietta Lacks lived. Henrietta Lacks was an African American woman who went to the doctor because she had cervical cancer. Her cells were taken and are still alive in culture today (Skloot 41). Hence, her cells were nicknamed Immortal (Skloot 41). Although many, at the time, saw no issue with using a patient without consent issue with what?
Henrietta’s cells were being inaugurated with space travel, infused into rat cells, and even being used to make infertile hens fertile again. However, these are only a few of the many accomplishments that Henrietta’s immortal cells made possible: “The National Cancer Institute was using various cells, including HeLa, to screen more than thirty thousand chemicals and plant extracts, which would yield several of today’s most widely used and effective chemotherapy drugs, including Vincristine and Taxol,”(pg.139). This example of logos from the text again shows just how important these Henrietta’s cells were to the future developments in
Your life, like many other has probably at some point been touched by Henrietta lacks and most likely you didn’t even know it.
U.S. Department of Health and Human Services. (n.d.). Understanding HIPAA. Retrieved April 22, 2009, from U.S. Department of Health and Human Services: http://www.hhs.gov/ocr/privacy/hipaa/understanding/summary/
US Congress created the HIPAA bill in 1996 because of public concern about how their private information was being used. It is the Health Insurance Portability and Accountability Act, which Congress created to protect confidentiality, privacy and security of patient information. It was also for health care documents to be passed electronically. HIPAA is a privacy rule, which gives patients control over their health information. Patients have to give permission any health care provider can disclose any information placed in the individual’s medical records. It helps limit protected health information (PHI) to minimize the chance of inappropriate disclosure. It establishes national-level standards that healthcare providers must comply with and strictly investigates compliance related issues while holding violators to civil or criminal penalties if they violate the privacy of a person’s PHI. HIPAA also has boundaries for using and disclosing health records by covered entities; a healthcare provider, health plan, and health care clearinghouse. It also supports the cause of disclosing PHI without a person’s consent for individual healthcare needs, public benefit and national interests. The portability part of HIPAA guarantees patient’s health insurance to employees after losing a job, making sure health insurance providers can’t discriminate against people because of health status or pre-existing condition, and keeps their files safe while being sent electronically. The Privacy Rule protects individual’s health information and requires medical providers to get consent for the release of any medical information and explain how private health records are protected. It also allows patients to receive their medical records from any...
Some of the things that HIPAA does for a patient are it gives patients more control over their health information. It sets boundaries on the use and release of health records. It establishes appropriate guidelines that health care providers and others must do to protect the privacy of the patients’ health information. It holds violators accountable, in court that can be imposed if they violate patients’ privacy rights by HIPAA. Overall HIPAA makes it to where the health information can’t b...
In the novel The Immoral Life of Henrietta Lacks by Rebecca Skloot, the author tells the miraculous story of one woman’s amazing contribution to science. Henrietta Lacks unknowingly provides scientists with a biopsy capable of reproducing cells at a tremendusly fast pace. The story of Henrietta Lacks demonstrates how an individual’s rights can be effortlessly breached when it involves medical science and research. Although her cells have contributed to science in many miraculous ways, there is little known about the woman whose body they derived from. Skloot is a very gifted author whose essential writing technique divides the story into three parts so that she, Henrietta
Rebecca Skloot’s novel, The Immortal Life of Henrietta Lacks, depicts the violation of medical ethics from the patient and researcher perspectives specifically when race, poverty, and lack of medical education are factors. The novel takes place in the southern United States in 1951. Henrietta Lacks is born in a poor rural town, Clover, but eventually moves to urban Turner Station. She was diagnosed and treated for cervical cancer at Johns Hopkins hospital where cells was unknowingly taken from her and used for scientific research. Rebecca Skloot describes this when she writes, “But first—though no one had told Henrietta that TeLinde was collecting sample or asked she wanted to be a donor—Wharton picked up a sharp knife and shaved two dime-sized pieces of tissue from Henrietta's cervix: one from her tumor, and one from the healthy cervical tissue nearby. Then he placed the samples in a glass dish” (33). The simple act of taking cells, which the physicians did not even think twice about, caused decades
..., the name of Henrietta Lacks needs to be introduced to the world since she is the woman who generated HeLa cells, because the name of the person who generated HeLa cells is still unknown. By doing this, her family will be honored and respected by others.