Discussing the Bioethical Issues presented in The Immortal Life of Henrietta Lacks

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Scientists know her as HeLa, the immortal cell line that has been used for numerous scientific achievements, including the polio vaccine and other research with other viruses. They were the first cells to be cloned and used with gene mapping and chromosome staining. They have been used in cancer research and hormone research and drug research. In fact, HeLa cells have been used in over 60,000 research articles (Skloot, 2010). However, the woman behind the cells was cast in the shadows for decades. Henrietta Lacks was a poor African American tobacco farmer from 1950’s Baltimore. After giving birth to her first child, she noticed blood in her urine and went to Johns Hopkins Hospital, where she was diagnosed with cervical cancer. During one of her treatments, cells from her cervix, cancerous and healthy, were removed without her knowledge and permission. These cells were then made into the immortal cell line that has been used widely in research. The unfortunate part of the situation was while scientists were profiting from their work with the HeLa cells, Lacks’ family was living in poverty without proper health insurance or the knowledge of Henrietta’s contribution to science. The case of Henrietta Lacks draws attention to the bioethical issues of informed consent, beneficence, not using people as a means to an end, and spreading knowledge.
The primary ethical debate that arose from the discussion of HeLa cells is the issue of informed consent. Lacks and her family were not told of the cells taken from her body until more than 20 years after Lacks had passed away. In fact, the family found out when researchers contacted them in order to get samples for genetic testing to learn more about the HeLa cells. Of course, at the time the ce...

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...public, which is preposterous considering that part of science is working for the public’s benefit. What this book emphasized was that we must not forget the people who may benefit from the studies as well as, perhaps, the person behind the study, who made it all possible. While from HeLa cells we gained scientific knowledge, from Henrietta Lacks, we learned these valuable lessons on the ethics of human research and the values of science. The unfortunate part is for Lacks it may be too late as clearly stated by Henrietta’s daughter: “her cells done lived longer than her memory.”

Works Cited

Belmont Report (1979). The Belmont Report: Ethical principles and guidelines for the protection of human subjects of research. Retrieved from hhs.gov/ohrp/humansubjects/guidance/belmont.html
Skloot, R. (2010). The Immortal Life of Henrietta Lacks. Crown Publishers, New York.

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