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Positives and negatives of inclusion in special education
Peer review essay on rett syndrome
Peer review essay on rett syndrome
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Rett Syndrome is a neurological and developmental disorder that affects the nervous system. It occurs almost exclusively in females, but in rare cases it affects males. It is actually the leading cause of severe impairment, mental retardation and developmental regression in girls. Rett syndrome is grouped as a pervasive developmental disorder (PDD) in which conditions are severe and pervasive, and that begins in early life and influences multiple areas of development. It is a developmental disorder, not a degenerative disorder and is characterized by problems in brain function that are responsible for cognitive and autonomic function. It affects a lot of functions including learning, speech, sensory sensations, movement, breathing, cardiac …show more content…
However, I feel that people need to realize how it affects the family around the child. Parents and siblings of the child have to make many sacrifices in order to accommodate him or her. Those who suffer from Rett Syndrome, in most cases, cannot perform daily tasks such as getting dressed, feeding oneself, and walking. Family members need to assist in all of these tasks. A child suffering from this disorder cannot be left alone. Therefore, someone from the family must always be there to watch him or her. Children with Rett Syndrome also grow irritable throughout the years. This can result in random fits in which the child makes loud grunting noises over a long period of time. This behavior can become taxing on a family over time. I have a lot of respect for those who must deal with these circumstances, while still showing love and care for that child. I believe that the most difficult aspect of this disorder is the way in which it develops. In other similar disorders, such as autism, it is known very early that there are genetic problems with the baby. However, in the case of Rett Syndrome, the child appears to develop normally. Parents are expecting their child to live a normal life until all of a sudden; the child’s development regresses. I see this as one of the most painful experiences a parent could ever …show more content…
John’s University Mission Attitudes can be incorporated into my research paper. One of our mission attitude deals with respect of a living individual and affirmation of the dignity of the human person. I find that this attitude fits perfectly into my paper. This is because people may not treat those suffering with disorders that are similar to Rett Syndrome as people. They may degrade them as if they aren’t important to this world. However, we must remember that everyone serves a purpose, and even though this group of people may not be able to do the things everyone else can, they are still dignified humans and should be treated
Due to this disease the body is slowly broken down by affecting the central nervous system of a person’s body. The children depicted in the essay are probably an example how fellow human beings should be around a disabled person. They just view the disabled person as another human being and respect them the same way. The children are proud to associate themselves with Mairs and do not shy away from introducing her to the general public. This is what a disabled person requires: that all those around him or her should respect them for what they are and give them unconditional regard
P. Values are important and lifetime beliefs that greatly influence our behavior and attitude (SPSY 185, 2016). “NADSP (National Alliance for Direct Support Professionals) defines values as a professional who have values, skills and knowledge that constitute a unique and important profession” (NADSP Code of ethics, 2016). “As a DSP it is very important to examine one’s own values and attitudes as well as how they might factor in to the relationship with the individual that they are supporting” (SPSY 287, 2016 p: 19). “Our values and attitudes are extremely important factors given the type of work that is required in the human service field” (SPSY 287, 2016 p: 19). Professionals work closely with individuals to value them and spending time with individual. Therefore, it is the best way to learn about individual values and beliefs. Often professionals have hard time to label people, we as a DSP’s must think that the people who we are supporting are same as “we”. Being a successful DSP’s, we must need to have greater knowledge and positive influence when it comes to help people with disabilities. To become successful, we must need to look for changes in people’ lives and their past experience by asking them or by being empathy. There has not been a lot of changes in people with disabilities lives so as a DSP’s professional, we believe that we need to bring out our skills, abilities and
I. Theory After reading the voice of Inclusion “From My Friend Ro Vargo” what an intriguing and captivating story. About a young girl who is severely impaired, name Ro Vargo who is diagnosed with (rett syndrome). Defined as “a progressive neurodevelopmental genetic disorder that affects females usually during infancy that is characterized by cognitive and psychomotor deterioration, slowed head and brain growth, stereotyped hand movements, seizures, and mental retardation”www.merriamwebster.com. Ro did not want people to talk about what she had (rett syndrome). To her she’s just an ordinary person. We see through Ro’s eyes as she takes us on her life’s journey. From the beginning of kindergarten through the end of college. Ro parents reveals
In her essay “On Being a Cripple,” Mairs describes her path of acceptance of her multiple sclerosis (MS) diagnosis by declaring that she is a “cripple” in alternative to the more broadly acceptable terms: disabled or handicapped. Her essay is written with humor, satire, an open heart, and open eyes. Mair’s purpose is to describe her acceptances of her condition by using rhetorical elements and appeals, such as ethos and pathos, in order to allure her audience.
Patricia Bauer was a former Washington post reporter and one of the founders of the UCLA, a school for young adults with intellectual disabilities, although she gains most of her knowledge on the topic from raising a daughter with Down Syndrome. This article was originally published in The Washington Post, one of the most circulates newspapers in America. When this article came out in August of 2008, two major things were happening concerning mental disabled people. The first was a movie that came out
Disability is a ‘complex issue’ (Alperstein, M., Atkins, S., Bately, K., Coetzee, D., Duncan, M., Ferguson, G., Geiger, M. Hewett, G., et al.., 2009: 239) which affects a large percentage of the world’s population. Due to it being complex, one can say that disability depends on one’s perspective (Alperstein et al., 2009: 239). In this essay, I will draw on Dylan Alcott’s disability and use his story to further explain the four models of disability being The Traditional Model, The Medical Model, The Social Model and The Integrated Model of Disability. Through this, I will reflect on my thoughts and feelings in response to Dylan’s story as well as to draw on this task and my new found knowledge of disability in aiding me to become
ASD individuals may find it hard to communicate and socialize with others around them. However, because each child is unique, they have their own unique abilities and ways of responding to new experiences. Other issues children with ASD have include; anxiety, sleeping problems, and learning disabilities. Those who are diagnosed with ASD or any other disability are usually judged and bullied. In the documentary Violet’s mother says she is afraid of her child being labeled and underestimated because she is diagnosed with autism. A child’s disability can also affect their family members. Family members may have a difficult time understanding and getting to know the autistic child in order to provide for them. They struggle to find interventions such as treatment and therapy for them, the right medical care, and trying learn to cope with all this. At times parents and caregivers can also feel stressed or irritated knowing they have to fulfill all of the child’s needs. Siblings on the other hand, may find it unfair that the autistic child gets the most attention and
Unfortunately, a lot of parents may have a difficult time accepting their child, and coping with their needs and the responsibilities. From the book “The Elephant in the Playroom,” some families dealt with depression and physical and mental deterioration of their health. These struggles were shown in the story by Laura Cichoracki. Laura’s son’s name was Patrick. Patrick was a 6-years-old boy with autism. “I wasn’t eating right, I wasn’t showering regularly, I wasn’t sleeping well” (Brodey, p. 64). I also read the story told by Susan Marrash-Minnerly, which highlighted emotions that parents face. Susan also shed light on how wonderful children with special needs can be to a family, such as her ten-year-old third grader who had autism. Susan talked about how it was normal to feel angry at times, especially with the ups and downs a child’s disability may come with. “When I look back, I want to tell other parents that a child’s future is worth grieving over – but it’s not the end of the world” (Brodey, p. 75). After reading these stories, it became apparent to me that families who are raising kids with special needs, need support, kindness, and available resources. “I was fortunate to be surrounded by other moms who understood my pain…who could be supportive and emphatic.” (Brodey, p. 67). Overall, educators can use this kind of information that was shared in “The Elephant in the Playroom” about family systems and risk/resiliency by creating lines of open communication between families. This is to connect parents together that share similar struggles. By creating open communication is can allows for the teacher and parents to be on the same page when it comes to the issues affecting special needs students and
I decided to focus my plunge on adults with mental and physical disabilities, because I had no prior experience with this group. Coming from an able-bodied family where no one has significant handicaps, I was generally shielded from people with disabilities. Over the years, I grew to associate dangerous stigmas with these people, even though they have no control over their circumstance. The
The paper that I’m writing is on Rett Syndrome. Rett is a rare and severe ‘girls only” form of autism. What is Rett you ask? Well it is neurodevelopment that is found in girls. If you are diagnosed with it they can feel overwhelmed, there is no cure for this disease. You are normally diagnosed with it in the early years (first 2 years of life). There are 4 stages of Rett 1 being the least dramatic case and 4 being the severe. The disorder was identified by Dr. Andreas Rett in 1966, but was not until 1983 when it was started to be researched by Dr. Bengt Hagberg. Apraxia is perhaps the most severely disability of Rett Syndrome that interfering with movement and speech, and eye sight.
Clare provides different paradigms of disability in order to demonstrate the wide variety of views concerning disabilities. He states that the paradigms of disability "all turn disability into problems faced by individual people, locate those problems in our bodies, and define those bodies as wrong," (Clare, 2001, p. 360). The first paradigm model Clare explains is the medical model which defines disability as a disease or a condition that is treatable. Next, he explains that the charity model defines disability as a tragedy and the supercrip model defines disability as a tough challenge that individuals overcome; the supercrip model makes individuals with disabilities out to be superheroes. Lastly, Clare explains that the moral model defines disability as a weakness. In order to demonstrate the paradigms and how they overlap, Clare cleverly uses an array of popular examples. One significant example is Jerry Lewis' telethon. During this time, Jerry Lewis attempts to raise money in order to find a cure for a condition. Overall, his Labor Day telethon raises money to end a disability by finding a cure for the broken bodies. This telethon employs the medical model because it demonstrates disability as a condition that needs to be treated. In addition, the telethon employs the charity model because it shows disability as a misfortune. All four disability paradigms are known as the social model because they are the ideas that society has about certain bodies. When society creates these ideas about disabilities, they create unnatural
The scenario presented is the tale of Executive A planning to retire. Leader B and Leader C are in contention to move into the CEO position. When Executive A retires, there will be a change in company performance along with how employees react, as Leader B and Leader C have different leadership styles from Executive A.
This tone is also used to establish an appeal to pathos which he hopes to convince the audience of the fact that handicapped people are still people and not less than anyone else. A very prominent example of Peace’s emotion is displayed when he says, “Like many disabled people, I embrace an identity that is tied to my body. I have been made to feel different, inferior, since I began using a wheelchair thirty years ago and by claiming that I am disabled and proud, I am empowered,” (para. 15). This declaration demonstrates to his audience that Peace is honored by who he is and what disabled people can do and that he is tired of being oppressed by the media. Peace also makes this claim to support his thesis in the first paragraph that states, “The negative portrayal of disabled people is not only oppressive but also confirms that nondisabled people set the terms of the debate about the meaning of disability,” (para. 1). This is Peace’s central argument for the whole article and explains his frustration with society’s generalization of handicapped people and the preconceived limitations set on them. Peace’s appeal to pathos and tone throughout are extremely effective in displaying to his audience (society) that those who have disabilities are fed up with the limits that have been placed in the
Is there anybody in your family with autism? Almost every book or article is about how autism affects the person with the disorder but never the family around them. Being a parent or a child who has autism can be extremely difficult and change your whole life. Some parents view having a child with autism is a bad thing and would take away their autism if they could. Other parents think having their child be different is a good thing and would not take it away. I think that talking about the effects on the family is very important and should be discussed.
... affects the diagnosed child, but it affects his or her parents, and siblings in many different ways. Different families go through it differently, but they are all affected emotionally, physically, socially, educationally, and financially.