Lobbying In Health Activist Organizations

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Lobbying in Health Activist Organizations As medical research has advanced and scientists have discovered new information about various diseases, affected subsets of the American population have formed health activist organizations to fight for their interests. In order to represent such interests, organizations must acquire the necessary funds with which to conduct their research, advertising, and other activities. And while large, private donations play an important role in the fundraising process, successful organizations like Autism Speaks and the Parkinson's Action Network have also learned to lobby the American government for additional funds. Lobbying activities, however, do not necessarily translate into an organization fulfilling …show more content…

These statements often encompass items such as a desire to fund research to cure the disease or to help patients with a condition acclimate to and become accepted by society. To accomplish such goals, activist groups engage in a number of tactics to make themselves heard. These tactics include research, creating networks of cooperation and media, forcing their way into existing formal and informal institutions, and gaining supporters through information campaigns3. Not all activist groups, however, place equal importance on all of the above methods. Some activist groups like the National Down Syndrome Society focus only on easing the quality of life for those with a particular condition. Other groups such as the Breast Cancer Research Foundation solely focus on advancing research to ultimately cure and prevent the disease in question. Finally, a third category of groups including ones like the ALS Association attempt to combine both ideals by funding research while also providing individual support. Given the scope and breadth of the goals established by many of these activist organizations, acquiring money becomes essential to continue operating. Funding research requires large amounts of money to pay for laboratories, equipment, researchers, and other such essentials. Campaigns geared more towards social integration and acceptance also usually need significant …show more content…

For example, House Republicans have recently tried to prevent multiple forms of medical treatments and procedures (like abortions) from retaining coverage under President Obama's Affordable Care Act10. Other types of legislation can increase taxes on non-profits, limit certain types of research (i.e., on stem cells), or otherwise negatively impact the ability of health activist organizations to function in their fullest capacity. Activist groups must therefore lobby the federal government in order to have representatives for their causes and goals in Congress. Convincing policy-makers of the importance of funding an organization can lead to the easier passage of favorable legislation or prevent potentially harmful legislation from gaining traction. Lobbying thus plays an essential role in health activism and merits a deeper examination of its

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