When researching disabilities and reading multiple different sources, it is extremely common to find many of the same themes throughout all of the sources. In Don’t Call Me Inspirational by Harylin Rousso, Rousso talks a lot about childhood experiences and parental perspectives, embodiment, the social model and ableism. All of these themes are also major topics in Berger’s Introducing Disability Studies and in Neilson’s A Disability History of the United States. Though a child’s perception is shaped by an innumerable amount of factors and circumstances, few are as significant as the insight provided by their parents. For children with disabilities, their parents’ role often extends beyond the assumed responsibilities to include acting as …show more content…
Her struggle to conceal her disability from herself and others was heavily influenced by her mother’s determination to make her appear “normal” as possible during her childhood. From hiding Harilyn’s perpetually moving right hand from the eyes of company to encouraging her to normalize her gait by walking in front of a mirror, Eve Rousso’s inability to accept the distinguishing features of daughter’s disability inadvertently provided the message that having cerebral palsy was something to be ashamed of. Though performed with the admirable intention of lessening stigmatization and instilling independence, Eve’s avoidance of the subject increased its amount of discomfort and confusion while simultaneously hindering Harilyn’s ability to accept herself as a person with a disability. Rather than identifying as a person with a disability, Harilyn often hid her diagnoses from friends and classmates and avoided contact with others who bore the label. Recognizing the differences between herself and others was an incredibly difficult aspect of her childhood, however, Harilyn’s feelings of inferiority coupled with a lack of understanding concerning her own disorder made this complicated time period incredibly challenging and set the stage for an even more difficult
As human beings, we like to make sure never to offend or judge anyone. We even have sayings like “never judge a book by its cover”. A metaphor that is often said whenever trying not to judge someone based on their outward appearance; however, it is not often that people practice what they preach. We judge people based on external factors within seconds. Even though we know what people see on the outside is not a defining factor or who we are as people. Nancy Mairs, author of On Being a Cripple, has to live through this every day. She knows this truth very well, and lives proudly with the fact that as she is disabled. Mairs is admirable for choosing to call herself a “cripple” and not be ashamed of it. Though the word is derogatory and a word that is avoided by society, Mairs identifies herself as a cripple because that is what she is. In explaining her disability, she says, “I haven’t always been crippled, ... to be whole of limb is ... infinitely more pleasant and useful. and if that knowledge leaves me open to bitterness … the physical soundness I once enjoyed is well worth the occasional stab of regret” (Mairs 186). What really
All these and more evidences used in the book support Peterson’s thesis and purpose—all of them discuss how having a disability made Peterson and others in her situation a part of the “other”. Her personal experience on media and
“I am a Cripple,” when people typically hear these words they tend to feel bad for that person, but that is exactly what Mair does not want. She prefers that people treat her the same as they would if she did not have the disease. Throughout the essay, Mair discuses her disease openly. She uses an optimistic tone, so that the reader will not recoil with sadness when they hear her discuss the disease and how it affects her life. In Nancy Mair’s essay “On Being A Cripple,” Mair uses her personal stories, diction, and syntactical structures to create an optimistic tone throughout the essay, so that the audience can better connect story.
In her essay “On Being a Cripple,” Mairs describes her path of acceptance of her multiple sclerosis (MS) diagnosis by declaring that she is a “cripple” in alternative to the more broadly acceptable terms: disabled or handicapped. Her essay is written with humor, satire, an open heart, and open eyes. Mair’s purpose is to describe her acceptances of her condition by using rhetorical elements and appeals, such as ethos and pathos, in order to allure her audience.
"On Being a Cripple" is an autobiographical essay by Nancy Mairs. The author was diagnosed with multiple sclerosis in her late twenties, and has since then lost full use of several limbs. Despite the stigma around the use of the word, Mairs refers to herself as a "cripple". With the use of this word she attempts to accept the reality of her situation without feeling sorry for herself. The author also demands the same of her readers and the people that she meets in her life. Mairs writes to those who wish to learn more about what it is like to live with this debilitating disease and how people react to it. She uses this essay to make a point about how society labels people while telling her story in a manner which cites examples from her life. She describes her life through everyday situations that occur when living with MS. Mairs does not have the same physical abilities that most of us don't think twice about, but she carries on with her life without the need for pity or a new vocabulary that attempts to make her condition seem less severe.
Disability is a ‘complex issue’ (Alperstein, M., Atkins, S., Bately, K., Coetzee, D., Duncan, M., Ferguson, G., Geiger, M. Hewett, G., et al.., 2009: 239) which affects a large percentage of the world’s population. Due to it being complex, one can say that disability depends on one’s perspective (Alperstein et al., 2009: 239). In this essay, I will draw on Dylan Alcott’s disability and use his story to further explain the four models of disability being The Traditional Model, The Medical Model, The Social Model and The Integrated Model of Disability. Through this, I will reflect on my thoughts and feelings in response to Dylan’s story as well as to draw on this task and my new found knowledge of disability in aiding me to become
Unfortunately, a lot of parents may have a difficult time accepting their child, and coping with their needs and the responsibilities. From the book “The Elephant in the Playroom,” some families dealt with depression and physical and mental deterioration of their health. These struggles were shown in the story by Laura Cichoracki. Laura’s son’s name was Patrick. Patrick was a 6-years-old boy with autism. “I wasn’t eating right, I wasn’t showering regularly, I wasn’t sleeping well” (Brodey, p. 64). I also read the story told by Susan Marrash-Minnerly, which highlighted emotions that parents face. Susan also shed light on how wonderful children with special needs can be to a family, such as her ten-year-old third grader who had autism. Susan talked about how it was normal to feel angry at times, especially with the ups and downs a child’s disability may come with. “When I look back, I want to tell other parents that a child’s future is worth grieving over – but it’s not the end of the world” (Brodey, p. 75). After reading these stories, it became apparent to me that families who are raising kids with special needs, need support, kindness, and available resources. “I was fortunate to be surrounded by other moms who understood my pain…who could be supportive and emphatic.” (Brodey, p. 67). Overall, educators can use this kind of information that was shared in “The Elephant in the Playroom” about family systems and risk/resiliency by creating lines of open communication between families. This is to connect parents together that share similar struggles. By creating open communication is can allows for the teacher and parents to be on the same page when it comes to the issues affecting special needs students and
Nancy Mairs, born in 1943, described herself as a radical feminist, pacifist, and cripple. She is crippled because she has multiple sclerosis (MS), which is a chronic disease involving damage to the nerve cells and spinal cord. In her essay Disability, Mairs’ focus is on how disabled people are portrayed, or rather un-portrayed in the media. There is more than one audience that Mairs could have been trying to reach out to with this piece. The less-obvious audience would be disabled people who can connect to her writing because they can relate to it. The more obvious audience would be physically-able people who have yet to notice the lack of disabled people being portrayed by the media. Her purpose is to persuade the audience that disabled people should be shown in the media more often, to help society better cope with and realize the presence of handicapped people. Mairs starts off by saying “For months now I’ve been consciously searching for representation of myself in the media, especially television. I know I’d recognize this self becaus...
Simi Linton’s memoir, My Body Politic, illustrates her journey as a young vibrant woman whose life altering tragedy left her in an unknown state, of which she needed to grow into a whole new body. As a 23 year old in 1971, Linton was a vivacious and passionate individual. Her memoir shares the transitions and experiences she faced, while offering us a deeper understanding of the disability culture and associated politics. Linton shows us how she “absorbed disability” and learned how to identify herself as someone who now had a foreign body to learn and a new life to adjust.
She told her readers that she has a muscle-wasting disease and she could only move three fingers on her right hand. She wrote that the reactions she got from most people were “Decidedly negative” (Johnson p.98) She wrote that she would hear thing such as “I admire you for being out; most people would give up.” And “You don’t let the pain hold you back do you?” (Johnson p.98) There is often talk about how popular culture teaches people to both see and not see the people with disabilities. Comments such as these are an example of such blindness. When a child sees a disabled person a parent’s first reaction would be to tell them not to stare. We teach children that it is impolite to be curious about people who live life differently than others. We carry the “its-not-polite-to-stare” idea into adult hood therefore when we come across a disabled we try not to make eye contact not as if we are being rude but because we are taught that it would offend them. All curiosity and attempts to understand are shut down at a young age for fear of offending someone. Therefore, any attempt to encourage is met with a deep misunderstanding of how the life of someone with disabilities truly works. Just because a person has a disability does not mean they are incapable of enjoying
In the book, The Short Bus, Jonathan Mooney’s thesis is that there is more to people than their disabilities, it is not restricting nor is it shameful but infact it is beautiful in its own way. With a plan to travel the United States, Mooney decides to travel in a Short bus with intentions of collecting experiences from people who have overcome--or not overcome--being labeled disabled or abnormal. In this Mooney reinvents this concept that normal people suck; that a simple small message of “you’re not normal” could have a destructive and deteriorating effect. With an idea of what disabilities are, Mooney’s trip gives light to disabilities even he was not prepared to face, that he feared.
As a parent, learning that your child has developmental disabilities can be a life-altering moment in time and can cause a devastating chain reaction of events. These events have the potential to change family priorities and structure, hurt relationships, deplete financial savings and stability, and emotionally drain everyone intimately involved with you and your child. How do you find human services programs, agencies, or advocates, whose primary job is to help you provide everything your child needs? It certainly can be an overwhelming barrier, but it's the first step in giving you, your child, and your family a plan of action, goals, success, good mental health, and bringing everyone back together. What are Developmental Disabilities?
Routledge: New York : New York, 2001. Shakespeare, T (2013) “The Social Model of Disability” in The Disability Studies Reader Ed Davis, L D. Routledge: New York.
This article examines how cross-cultural factors influence the view point towards children and adults with disabilities. It explains why social attitude in determining personal, social, educational, and psychological needs of persons with disabilities. The article looks at the efforts that United Nations agency, governments and national international disability organizations to eliminate prejudices. The way that those that had a disability in the past helped to shape the way that they were treated throughout history and made a cause for having the American Disability Act.
Children with disabilities are more in the public eye than years ago, although they are still treated differently. Our society treats them differently from lack of education on special needs. The society labels them and make their lives more difficult than it has to be becau...