Children With Special Health Care

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Children with special health care needs (CSHCN) are youth with chronic health conditions that require more health and related services than that of an average child (United States Department of Health and Human Services [USDHHS], 2013) It is estimated that 750,000 CSHCN transition from the pediatric to the adult health care setting in the United States every year (Scal & Ireland, 2005). Often CSHCN develop poorer health outcomes when they move to adult care including decreased disease specific outcomes, decreased medication compliance, decreased follow up care, and decreased quality of life (Campbell et al., 2010). The United States Department of Health and Human Services, Health Resources and Services Administration, and the Maternal Child Health Bureau recommend that “youth with special health care needs receive the services necessary to make appropriate transitions to adult health care” (USDHHS, 2013, p. 46). To ease the change, transitional care programs and interventions are utilized to provide support needed through the use of provider, parent and patient education and guidance. The American Academy of Pediatrics (AAP), the American Academy of Family Physicians (AAFP) the American College of Physicians (ACP), and Healthy People 2020 endorse the use of transitional care programs (2002; USDHHS, 2011). Problem Statement There is a problem in asserting the efficacy of transitional care programs in CSHCN. Despite the endorsements of various institutions in support of transitional care programs, little has been done to study the effectiveness of the programs of improving patient outcomes (Pai & Ostendorf, 2011). This lack of information has left a large gap in clinical knowledge about the proper use, implementation, and efficacy... ... middle of paper ... ...process (AHRQ, 2014; McNeil, 2011; Scal & Ireland, 2005). However, due to the various disease states, developmental levels, and cultural expectations in CSHCN, providers and researchers have been unable to recommend one standardized model for all adolescents experiencing health care transitions (Kaufman & Pinzon, 2007). Consequentially, a wide assortment of transitional interventions, frameworks, and patient and family training programs exist (AHRQ, 2014). Clinical Pathways. A frequently studied interventions for transitional care includes the use of individual or disease specific transition timelines or clinical pathways (AHRQ, 2014). Transition timelines are created years before CSHCN are due to transition to adult care (Gold et al., 2015). These timelines are formal written plans that involve the patient, their parents, and the provider (Kaufman & Pinzon, 2007)

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