Primary Proposal: A BRCA+ patient’s perspective. Have you ever been faced with a medical decision, formally suggested to you by a surgeon, only to wonder afterward if you made the right choice? As a patient who was formally educated in oncology, I was that person. I always wondered how other women felt about their decision after showing up for prophylactic bilateral mastectomies. Faced with a genetic mutation, how did they feel after the surgery? Were they relieved? Did they have regrets? Were their friends and family suppor...
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In conclusion, I believe my greatest chance at success with Web 2.0 social media stands with my first proposal. Using Facebook, Twitter and forums I will circulate the Google Doc online questionnaire which will truly help other women. This sharing of knowledge in an anonymous survey, with regard to a very difficult decision, may actually save someone from dying of cancer. It is extremely difficult to muster up the emotional strength to show up for prophylactic bilateral mastectomies and or prophylactic oopherectomies. Yes, women do have reconstruction, and the choices are widely varied, however this too is also addressed in my survey. I believe the strength of social media can be used to help the BRCA+ woman who is facing a difficult decision, and it will lift up the spirits of those who have gone through it-- to know that their voices are being heard.
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