Essay about The Treatment Of Cystic Fibrosis

Essay about The Treatment Of Cystic Fibrosis

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As mentioned previously, cystic fibrosis is one of the most severely life-shortening genetic diseases today. Although people eventually succumb to this disease process, medicine has made great strides in increasing the life expectancy to over 40 years since the 1940s (Kreindler and Miller, p1221). Nearly half of the cystic fibrosis patients are over 18 years old. Because of this, it should be a priority for these patients to be transferred from pediatric CF centers to adult care CF centers. Adults with cystic fibrosis tend to have more complications related to the affected systems such as liver failure and diabetes. This not only adds more complications, but also the need for additional and more specific treatment. A study completed and published in 2013 found that children had a less rapid decline in pulmonary function after transfer to adult care centers than the patients who remained in pediatric care (Tuchman and Schwartz, 852). With the increase of complexity that age brings to their health condition, an increase in the need for independence occurs as well. As kids, majority of treatments and cares was done by the parents. Transferring the care responsibilities to the patient tends to be a more difficult task than one may think. It has been seen that an increase in independence and responsibilities of adolescents with cystic fibrosis comes with a decrease in compliance and adherence to the treatment plan. A research review done by James Kreindler and Victoria Miller looks at research and transition plans done by practitioners to transition pediatric cystic fibrosis patients into the adult care system. One of the major points they make in this study is that the idea that they are dealing with a child with a chronic illness...


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... Transition Program, 2015). Attached is the Nationwide Children 's Hospital checklist they provide for patients ages 15-16 (Appendix A). Susan 's parents should look into her receiving care at this clinic and completing the checklist. Based on her responses, her parents along with the healthcare providers should work on educating where necessary. These checklists will be extremely useful because they show how the child should be independent and where they need more work and teaching if they are unable. Along with helping Susan become more independent, it will promote ongoing education and help her parents transition into a more supportive role throughout the years. Becoming involved in such a well respected cystic fibrosis that Nationwide Children 's Hospital provides will allow for the best care that Susan needs in order to be as healthy and independent as possible.

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Essay about The Treatment Of Cystic Fibrosis

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