Life with Vision Loss Due to MS

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Life with Vision Loss Due to MS

Joyce Bohen recently wrote a book about her experience with multiple sclerosis. She told about her battle with multiple sclerosis and one of her major symptoms, optic neuritis. In this book, she told each individual to imagine life from one day being able to see bright colors and distinct pictures to only realize that as each day goes by the world is beginning to look darker and darker until you can see nothing but black. Not only did she experience blindness but also came the intense pain. After seeing a neurologist many times and continuously being treated with steroids to help her vision return, she finally gave up her battle and began to accept the idea that she would never be able to see again. The goal of her book was to help those with low vision accept the idea that life will never be the same and that there are strategic ways to get around this disability. One of the coping mechanisms she suggested was to outline doorways, steps, and wall switches with high contrast or textured tape. This story of one woman's dedication and perseverance to get through her disability should give researchers all the persuasion needed to continue on discovering permanent treatments or even preventive methods for optic neuritis (Cohen, Dinerstein, & Katz, 2001).

Another woman's determination went beyond coping mechanisms. After being touched by her brother's battle with multiple sclerosis Silvia Lawry created the National Multiple Sclerosis Society. Her goal was to begin research that could help end the suffering of all those individuals who were diagnosed with multiple sclerosis. Her dream is to try to help discover a cure for symptoms such as optic neuritis (Scott, 2001).

Multiple sclerosis can be defined as an inflammatory, autoimmune, and demyelinating complex disease of the central nervous system (Kidd, 2001). More common in women than men, the disease can strike at an early age, "especially when reproduction is a major consideration" (Sadovnick, Guimond, & Dwosh, 2001 p374). It is known to be the most common cause of "neurological disabilities in young adults" (Kidd, 2001 p540).

The most common type of multiple sclerosis is the relapse remitting which later turns into secondarily progressing. This means that the patient will no longer go into relapse but rather begins progressing farther into the disease. There is a disability scale called Kurtzke's Extended Disability Status Scale that determines the status and progression of the disability.

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