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...the fear of rejection (Gray, 2000). If parents of CF sufferers do not fully understand the condition, how can they successfully explain the condition to other people? Duff, (2003) highlights the needs for further investigation in this area and suggests that to date studies carried out in the area of CF in non- Caucasian groups have only just focused on screening; none have examined the lived experience or explored how CF has impacted on their personal lives. This study aims to close the gap in CF research by focusing on understanding the lived experience of non-Caucasian CF sufferer. In similar respect, this paper aims to; 1-Understand the lived experience of South Asian CF patients 2-Identify non-medical reasons as to why this difference occurs 3-Identify an understanding of the mechanisms CF patients implement when coping with their diagnosis throughout life.
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