Funding of sickle cell diseases because of Race.
“In the United States, it's estimated that sickle cell anemia affects 70,000–100,000 people, mainly African Americans” (NHLBI, NIH, Who is at risk for sickle cell anemia). SCD is a disease that is a serious disorder in which the body can make normal blood cells and sickle shape cells. Sickle shape cells can block the blood flow in your vessels and cause pain or organ damage also put you in risk for infections. SCD has no cure available but there are many treatments out there to deal with the complications of it. From over years treatments did get better from way back in the day doctors have learned. Sickle cell disease has lack of attention and funding because it’s only affecting African American the most.
Sickle cell was first discovered by Dr. Ernest irons that was a hospital intern who look over a patients cell which seem to be different he called them “sickle cell shaped”. Sickle cell is know as a negro inherited diseases which is incorrect not only African Americans have this diseases. Many other races are effect by this diseases and regions all over the world such as India, Mediterranean countries, South American. In this case sickle disease work kind of like vaccination for malaria another diseases, this is the most common inherited disease in American. Anyone who has sickle trait and have a baby with someone who has the trait also can bring a baby into the world the world with SCD.
Pittman 2
The first funding for sickle cell disease began thirty years ago the federal legislation dealing with sickle cell was accepted. This legislation present notab...
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...ular dystrophy, but less than $100,000 for SCA. National Institutes of Health grants for many less common hereditary illnesses exceed those for SCA.” (Gary A. Gibson, “Sickle cell disease: Still here and still causing Pain’) “If these conditions affected the white mainstream population rather than ethnic minority communities, maybe they wouldn’t be so badly overlooked.” (Sarah calkin, “Race ‘a factor” in variability of sickle cell services”) In these cases Race remind a big part when it’s affecting African American it’s a slow process on health care and researchers. If sickle cell was affecting more whites or wasn’t inherited the most by African American would it be a big deal as Cancer or HIV. Questions remind why cant sickle cell disease get much attention or funding for high organizations and researchers where is the social justice American suppose to have done.
The distrust between the African American community and white medicine has been a factor far before Henrietta, but her story definitely contributed to the long history. Had Henrietta been white, I am almost sure that she would be a national hero and historical figure. Through this course was my first time even coming across this story, but I want more to know about it. If the cure for cancer is ever found it would only be fair to give Henrietta over half the credit. Nevertheless, we are still making strides towards racial equality as it goes hand in hand with informed consent. We have to educate more African Americans on what informed consent is so that there are no more cases like Henrietta. You have the right to know what is being done or not being done to your body, and you should have the option to not only decide your fate, but understand the pros and cons of each
Large disparities exist between minorities and the rest of Americans in major areas of health. Even though the overall health of the nation is improving, minorities suffer from certain diseases up to five times more than the rest of the nation. President Clinton has committed the nation to eliminating the disparities in six areas of health by the Year 2010, and the Department of Health and Human Services (HHS) will be jumping in on this huge battle. The six areas are: Infant Mortality, Cancer Screening and Management, Cardiovascular Disease, Diabetes, HIV Infection and AIDS, and Child and Adult Immunizations.
Cohn, Jay N., The Use of Race and Ethnicity in Medicine: Lessons from the African-American Heart Failure Trial, J.L. Med. & Ethics, Race and Ethnicity, Fall 2006, p 552-554.
Though social problems affect a wide variety of people from all races, classes, and cultures; minorities, specifically African Americans, encounter social problems on a multi-dimensional basis. Poverty, employment rates, discrimination, and other social problems strike African Americans in such a way that it is nearly impossible to separate them; each individual has different background, socially and physically, that would determine in which order his or her social problems need to be solved. Impoverished blacks in the inner city may have difficulty finding or keeping jobs, while others may have jobs, but face troubles with work discrimination that prevent them from moving upward .Underemployment, workplace inequalities, and unbalanced medical attention are three closely related social problems that, if ameliorated together, could increase upward mobility, decrease poverty levels, and tighten the lifespan gaps for not only blacks, but also other minority groups. The purpose of this paper is to show what effects these three problems have for blacks.
Health Disparities and Racism is an ongoing problem that is reflected among society. Health is when an individual is physically, mentally and social well being is complete. However health disparities seems to be a social injustice within various ethnicities. Health disparities range from age, race, income, education and many other things. Even though we realize health disparities are more noticeable depending on the region of country where they live in. Racism is one of the most popular factors, for why it’s known that people struggle with health.
Even though the United States government was already making improvements to the healthcare system, they excluded African Americans from all the progress that they made. Most believed that African Americans brought it upon themselves and that they inherited their sicknesses, and diseases. “Richmond's city officials were also aware that the high death rate of the city's African Americans, usually about twice that of whites, inflated the average for the city as a whole and negatively affected the health of all of Richm ” (Hoffman, 2001, p.177). Officials in Richmond Virginia first started to notice at how bad their death rates were when other states started to comment on it. African Americans made up the majority population in Richmond and even when they brought attention to problems they were excluded from the solutions, and the government was mostly worried about how the state looked overall. Eventually the government did have to step in and help them some. “Only in those programs administered by the Health Department's nurses did Richmond's African Americans receive anything like an equitable share ofthe benefits ofthe city's conversion to modern public health policies and practices, and even practices, and even there, the results were limited ” (Hoffman, 2001, p 188). Africans Americans were helped eventually but at a very limited amount compared to
Studies have analyzed how African Americans deal with an enormous amount of disease, injury, death, and disability compared to other ethnic group, and whites, Utilization of health services by African Americans is less frequent than other ethnic groups in the country. This non utilization of services contributes to health disparities amongst African Americans in the United States. Current and past studies have shown that because of discrimination, medical mistrust, racial/ethnic background, and poor communication African Americans tend to not seek medical care unless they are in dire need or forced to seek professional care. African Americans would rather self –medicate than to trust a doctor who might show some type of discriminatory
Medical research in the United States has a disgraceful history of exploitative studies in which African Americans were targets of abuse in the name of medical and scientific progress. African Americans have been used as the testing ground for drugs, treatments, and procedures since the time of slavery. The tolerance of the human frame and the endurance of the soul have been pushed to the limit in many of these experiments. From the physical demands on plantation work and the torturous treatment of slavery to the mental anguish inflicted on a slave’s soul by their masters, blacks have received deplorable treatment sanctioned by a white society. The end of slavery and the ushering in of the twenty first century did not end the torturous treatment and mental abuse. African Americans have been used for medical experimentation without consent for decades. Ironically they are treated as inferior and often given fewer rights than others, but amazingly their cells and bodies are treated as equals in laboratories for medical research, the results of which can save, extend and enhance the lives of others. Although color lines that are drawn in many aspects of life and inequitable treatment doled out based on the depth of the color of one’s skin, actually astounding results from medical experimentation on African Americans has produced drugs, cures and treatments for even those who do not value people of color, leaving the question of ethics and equity hanging in the balance.
...that Satel needs to do more research. For example, in her article, she mentions that Primary-care physicians who lack board certification and who encounter obstacles to specialized services are more likely to practice in areas where blacks receive their care—namely, poorer neighborhoods, as measured by the median income, but she doesn’t back it up with research. Although some may object that health care is color blind and that doctors do their best to administer health care proportionately, I would reply that racism plays a role in the health care disparities. Racism has always been an issue and there is no way people can reject that fact. This issue is important because the health care disparity gap is large and something needs to be done about it. As IOM said, people need to be aware of what is going on so as to take appropriate steps in order to break the gap.
Race-based medicine is not meant to divide people, but rather to give better medical help to people of a certain demographic. Race-based medicine is created based on knowledge of predispositions of any given race. For example, it is a fact that heart disease is the leading cause of death for racial groups including African-Americans, Hispanics, and whites in the United States. When medical experts have this knowledge, the process of making diagnoses is
Healthcare disparities are when there are inequalities or differences of the conditions of health and the quality of care that is received among specific groups of people such as African Americans, Caucasians, Asians, or Hispanics. Not only does it occur between racial and ethnic groups, health disparities can happen between males and females as well. Minorities have the worst healthcare outcomes, higher death rates, and are more prone to terminal diseases. For African American men and women, some of the most common health disparities are diabetes, cancer, hypertension, cardiovascular disease, and HIV infections. Some factors that can contribute to disparities are healthcare access, transportation, specialist referrals, and non-effective communication with patients. There is also much racism that still occurs today, which can be another reason African Americans may be mistreated with their healthcare. “Although both black and white patients tended not to endorse the existence of racism in the medical system, African Americans patients were more likely to perceive racism” (Laveist, Nickerson, Bowie, 2000). Over the years, the health care system has made improvements but some Americans, such as African Americans, are still being treating unequally when wanting the same care they desire as everyone else.
African Americans face a multidimensional health care crisis that affects the young or old, rich or poor. Too many African Americans are uninsured or underinsured. The elderly cannot afford long-term health care leaving the family to care for them. Health care cost is constantly rising and are out of control, reform is the only way out.
Seeking to position lower socioeconomic status above racial/ethnic biases or vice versa is irresponsible to the goal of eliminating healthcare delivery differences at large. Both these are realities of a group of people who are not receiving the same level of care from the healthcare professionals although they exist within one of the most resource rich countries in the world, the United States. According to House & Williams (2000), “racism restricts and truncates socioeconomic attainment” (page, 106). This alone will hinder good health and spur on disparities as racism reduces the level of education and income as well as the prospect of better jobs. Blacksher (2008) cites the nation’s institutionalized racism as one of the leading factors
Today’s society protects against discrimination through laws, which have been passed to protect minorities. The persons in a minority can be defined as “a group having little power or representation relative to other groups within a society” (The Free Dictionary). It is not ethical for any person to discriminate based on race or ethnicity in a medical situation, whether it takes place in the private settings of someone’s home or in a public hospital. Racial discrimination, in a medical setting, is not ethical on the grounds of legal statues, moral teachings, and social standings.
Despite the substantial developments in diagnostic and treatment processes, there is convincing evidence that ethnic and racial minorities normally access and receive low quality services compared to the majority communities (Lum, 2011). As such, minority groups have higher mortality and morbidity rates arising from both preventable and treatable diseases judged against the majority groups. Elimination of both racial and ethnic disparities is mainly politically sensitive, but plays an important role in the equitable access of services, including the health care ones without discrimination. In addition, accountability, accessibility, and availability of equitable health care services are crucial for the continually growing