Raising a Child with a Disability: Journal Entry #2:
Summary:
This article mainly examines ways in which parents can deal properly with the news of being told that their child has a disability. There are a few stories in the article which emphasize the way the parents felt when they found out about their child’s disability. In most cases, the parents felt shattered, overwhelmed and completely shocked. The article explained that parents have an expectation of having that “perfect” child and when one is told that the child is not so perfect, their dreams and their lives become devastating. The reading examines ways in which to build a support system as well as ways in which to keep a balance in your life. The author indicates the importance of keeping a positive attitude when in this situation.
Main Points:
This article was very interesting and there are a few key points that stand out. The author explained that it is important to be an advocate for your child by learning as much as you can about the disability that they have. Also, she mentioned that if a parent keeps on living in denial about the illness or disability, that this will never help the child or the parent. I also found it interesting when she spoke about support within the family as well as outside the family. Lastly, I thought it was important for her to mention the strain that a family with a disabled child will incur.
Reflection:
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Due to this disease the body is slowly broken down by affecting the central nervous system of a person’s body. The children depicted in the essay are probably an example how fellow human beings should be around a disabled person. They just view the disabled person as another human being and respect them the same way. The children are proud to associate themselves with Mairs and do not shy away from introducing her to the general public. This is what a disabled person requires: that all those around him or her should respect them for what they are and give them unconditional regard
Lavoie’s workshop provokes an emotional response. After viewing life through the eyes of a child with special needs, I cannot help but have a more significant understanding of what people, especially children with disabilities, must deal with every day, everywhere. During the many years that I have worked with children with various disabilities, I have encountered each of the topics discussed in Lavoie’s workshop and agree with the points he makes regarding children with disabilities. Particularly impacting the way I interact with my students are the topics concerning: anxiety, reading comprehension, and fairness.
Disability is a ‘complex issue’ (Alperstein, M., Atkins, S., Bately, K., Coetzee, D., Duncan, M., Ferguson, G., Geiger, M. Hewett, G., et al.., 2009: 239) which affects a large percentage of the world’s population. Due to it being complex, one can say that disability depends on one’s perspective (Alperstein et al., 2009: 239). In this essay, I will draw on Dylan Alcott’s disability and use his story to further explain the four models of disability being The Traditional Model, The Medical Model, The Social Model and The Integrated Model of Disability. Through this, I will reflect on my thoughts and feelings in response to Dylan’s story as well as to draw on this task and my new found knowledge of disability in aiding me to become
Unfortunately, a lot of parents may have a difficult time accepting their child, and coping with their needs and the responsibilities. From the book “The Elephant in the Playroom,” some families dealt with depression and physical and mental deterioration of their health. These struggles were shown in the story by Laura Cichoracki. Laura’s son’s name was Patrick. Patrick was a 6-years-old boy with autism. “I wasn’t eating right, I wasn’t showering regularly, I wasn’t sleeping well” (Brodey, p. 64). I also read the story told by Susan Marrash-Minnerly, which highlighted emotions that parents face. Susan also shed light on how wonderful children with special needs can be to a family, such as her ten-year-old third grader who had autism. Susan talked about how it was normal to feel angry at times, especially with the ups and downs a child’s disability may come with. “When I look back, I want to tell other parents that a child’s future is worth grieving over – but it’s not the end of the world” (Brodey, p. 75). After reading these stories, it became apparent to me that families who are raising kids with special needs, need support, kindness, and available resources. “I was fortunate to be surrounded by other moms who understood my pain…who could be supportive and emphatic.” (Brodey, p. 67). Overall, educators can use this kind of information that was shared in “The Elephant in the Playroom” about family systems and risk/resiliency by creating lines of open communication between families. This is to connect parents together that share similar struggles. By creating open communication is can allows for the teacher and parents to be on the same page when it comes to the issues affecting special needs students and
What comes into one’s mind when they are asked to consider physical disabilities? Pity and embarrassment, or hope and encouragement? Perhaps a mix between the two contrasting emotions? The average, able-bodied person must have a different perspective than a handicapped person, on the quality of life of a physically disabled person. Nancy Mairs, Andre Dubus, and Harriet McBryde Johnson are three authors who shared their experiences as physically handicapped adults. Although the three authors wrote different pieces, all three essays demonstrate the frustrations, struggles, contemplations, and triumphs from a disabled person’s point of view and are aimed at a reader with no physical disability.
Graziano’s article over the handling of his son’s disability in the classroom also involves issues that relate to teachers detecting signs of mental illness in the classrooms, how teachers identify a behavioral troubled child, and training school counselors on the Section 504 policy that are all happening in the world today. Realizing these issues can help parents with giving their child the best out of their education and can also help teachers understand the importance of their relationship with students. Everyone should have the opportunity for a brighter future and having a learning disability should not be the end of the road for any student.
The challenges are mainly due to the daily difficulties of living with a certain diagnosed disability and such challenges are intensified by social stigma and cruelty. The ignorance about the same gives way to negative social perceptions which affects both the people with the disability and their families.
People don’t know what is like for a family to deal with a relative who has Spina Bifida. Sandler (1997) gave insight on how the family of the affectee should handle this condition and the mutual support that should be offered. The discovery through the years show that family is not only critical but also a key factor in the wellness of the child. In addition to the importance of incorporating the three R’s – Roles, Relationship, and Responsibility into the household system. Later sharing the struggles and stress of being a parent with a disabled child with Spina Bifida. Having to cope with other external resources to try and alleviate the heightened stress such as but not limited to community, family and spiritual sections. Showing how culture
The paper starts with introduction to the term disability. I go on with describing related meaning and understanding of the term and how it connotes a negative implication for the group. The historical and
It could be said that in modern industrial society, Disability is still widely regarded as tragic individual failing, in which its “victims” require care, sympathy and medical diagnosis. Whilst medical science has served to improve and enhance the quality of life for many it could be argued that it has also led to further segregation and separation of many individuals. This could be caused by its insistence on labelling one as “sick”, “abnormal” or “mental”. Consequently, what this act of labelling and diagnosing has done, is enforce the societal view that a disability is an abnormality that requires treatment and that any of its “victims” should do what is required to be able to function in society as an able bodied individual.
When a parent first finds out that their child has some sort of disability, it isn’t easy for them to first accept that there is something wrong with their child. Once the parents learn more about their child condition and get the help that they and their child need it can make things a little easier for them. There are so many professionalism options that are available to help the family create a stronger bond between all of them and also work at a team for each other.
It’s Wednesday and a mother just kissed her son goodbye as he walked into the classroom. The mother walks back to her car and proceeds to work. Her son has Down Syndrome, but attends a private school where special needs children have their own classroom. Her son Alex loves going to school to see his friends, like any child would. With having Down Syndrome, Alex has some rough days in the classroom.
I found these sources to be very informative when it came to learning what it is really like to have a child with a disability. Both holland stories were nice perspective to hear. The first holland story talked about being prepared for italy and arriving in holland. I thought this was a beautifully written piece and it gave me an insight into what it's like to blind sided with something like that. The opposite opinion in the I F**ing hate holland was also nice to hear. I feel like in social media today it's all about making yourself seem as perfect as possible. The moment you see someone ranting about something on facebook we all scroll down cause we just don't want to hear about people problems. But if we see someone's cute family picture
Being disabled is just a single facet of their life, and they have the same capacity to be happy as anyone else. While these three authors have different reasons to write their essays, be it media unfairness, ignorance, or ethical disputes, they all share a basic principle: The disabled are not viewed by the public as “normal people,” and they are unfairly cast away from the public eye. The disabled have the same capacity to love, desire and hurt as any other human being, and deserve all of the rights and privileges that we can offer them. They should be able to enter the same buildings, have representation in the media, and certainly be allowed the right to live.
Education is a profession which requires a teacher to be able to communicate with a multitude of students on a variety of levels. There is not a class, or student for that matter, that is identical. Therefore, teachers must be able to identify and help educate students from all different types of backgrounds and at different levels. Teaching a singular subject presents difficulties, but teaching students with disabilities should not be one. There are three main teaching areas that need to be focused on when teaching a student with a learning disability. Teachers need to focus on the strategies that will assist students with reading comprehension skills, writing skills, and maintaining appropriate behaviors in a classroom setting.