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Participating in data-gathering activities allows them to have a say in the process and empowers the patient voice” (Van Goor, 2014). “Every sickness has an alien quality, a feeling of invasion and loss of control that is evident in the language we use about it” (Hustvedt, 2010). No one likes to be sick, but it is inevitable that everyone is sick as sometime during their life. Some unfortunately are sicker than others, like in the case of my nephew. I know in his case that there is no cure for what he has, but that doesn’t mean that everyone should just sit back and wait for him to die. There are plenty of things that can be done to make his quality of life the best that it can be. Sickness really does have an alien quality to it, just as Hustvedt says. But it is what you do with that alien that makes a difference. People often talk about sick people in the worst and most depressing way and they shouldn’t. People who have MD should be celebrated. These people should be given every opportunity to live their lives to the fullest. It is not about sitting around and feeling ...

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