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Essay of informed consent
Issues of ethics in research problems
Essays on henrietta lacks
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Imagine being the seed that germinates a billion dollar industry, and leads to a plethora of medical innovations and advancements, without granting informed consent or being compensated for your part in a movement that transmogrified the landscape of the medical world. Though one could ponder the ethical quandary delineated in such a hypothetical situation, this very event has already transpired. Henrietta Lacks, an impoverished African-American woman who suffered from cervical cancer, died in 1951 and was the unknowing seed, or in this case cell, that germinated the very tangible billion dollar medical industry created by her cell line. Dubbed “HeLa cells,” Lacks’s unwitting contribution has been utilized in over 74,000 medical studies, leading …show more content…
Though some reports claim that Lacks had signed an “intentionally vague” consent waiver, it is evident that the severity of what she was agreeing to was not conveyed. Due to this issue, consent has become a major point of controversy in the medical field. Previously, our world was one of medical paternalism, where doctors and medical treatment were viewed as authoritative figures, and the patients their obsequious subordinates. Therefore, patients like Lacks likely didn’t think twice about the ethical standards of their physicians, or their trustworthiness. Today, however, patients have taken charge and often dictate their care to a much larger degree. Ethical standards have become major points of concern in the medical board, including the vast development of The American Medical Association’s Code of Ethics, with one major development being informed consent. Maintaining the standards of informed consent ensures that potential cell donors understand both the altruistic benefits and the potential disadvantages to their decision. Had these standards been employed previously, stories of people like Lacks wouldn’t exist in the first place. Nevertheless, consent is merely one of the many issues that have been associated with tissue …show more content…
Numerous medical companies have been able to accredit cells, most notably the HeLa cells, for hundreds of millions of dollars in revenue. Conversely, the cell donors themselves rarely receive any of prodigious proceeds. However, as some have noted, the donations wouldn’t generate such revenue without the diligent work of the medical companies themselves. Yet, with such a high margin of profit, one could argue that it’s only fair that the donors themselves, as well as their descendants, should get a percentage of the proceeds. Harkening back to the story of Henrietta Lacks, one is quick to note that her descendants received none of the revenue generated from Lacks’s immortal cell line. In fact, her descendants could not even afford to buy into the very healthcare system that she revolutionized. Ultimately, it’s important to note that the medical companies themselves are primarily responsible for the results yielded from cell donations due to their rigorous work, though it’s quite evident that the donors themselves should receive a portion of the profits. Even still, other disadvantages to tissue collection linger throughout the practice of
All I can say is amazing information of your glorious and late Henrietta Lacks. This incedible women bettered our society in ways no common human could understand at the time because of how complex this matter was and still very much indeed is. I know there is much contraversy with the matter of how scientists achived immortal cells from your late relative, and I do strongly agree with the fact that it was wrong for these researches to take advantage of this incredible women, but I know it is not for me to say nonethless it must be said that even though it was wrong to take Lacks’ cells when she was dying sometimes one must suffer to bring joy to the entire world.
The family first heard that Henrietta’s cells were alive and being sent around the world, twenty-two years after Henrietta’s death. After discovering that Henrietta’s cells were in circulation, the family began to blame John Hopkins for taking Henrietta’s cells without permission and commercializing the cells to make multi-million dollar industry, while her family was living in poverty without health insurance. The John Hopkins Hospital has made various statements stating that the hospital never received funds for the HeLa cells specifying that Gey donated all of his HeLa cells samples to fellow researchers. Therefore, the sole benefactors of the HeLa cells profits are the biotechnology companies, which sell vials of HeLa cells for up to ten thousand
An abstraction can be defined as something that only exists as an idea. People are considered abstractions when they are dehumanized, forgotten about, or segregated and discriminated against. The scientific community and the media treated Henrietta Lacks and her family as abstractions in several ways including; forgetting the person behind HeLa cells, giving sub-par health care compared to Caucasians, and not giving reparations to the Lacks family. On the other hand, Rebecca Skloot offers a different perspective that is shown throughout the book. Rebecca Skloot’s book The Immortal Life of Henrietta Lacks describes the trials and tribulations the Lacks family has gone through because of HeLa cells and shows how seeing a person as an abstraction is a dangerous thing.
The Immortal Life of Henrietta Lacks by: Rebecca Skloot has a lot of themes, but one that is most relevant in my opinion is the racial politics of medicine. Throughout the chapters, there were examples of how Henrietta, being African American, prevented her from receiving the same treatment as the white woman sitting right next to her in the waiting room. The story begins with Henrietta going to Johns Hopkins Hospital and asking a physician to check a “knot on her womb.” Skloot describes that Henrietta had been having pain around that area for about a year, and talked about it with her family, but did not do anything until the pains got intolerable. The doctor near her house had checked if she had syphilis, but it came back negative, and he recommended her to go to John Hopkins, a known university hospital that was the only hospital in the area that would treat African American patients during the era of Jim Crow. It was a long commute, but they had no choice. Patient records detail some of her prior history and provide readers with background knowledge: Henrietta was one of ten siblings, having six or seven years of schooling, five children of her own, and a past of declining medical treatments. The odd thing was that she did not follow up on upcoming clinic visits. The tests discovered a purple lump on the cervix about the size of a nickel. Dr. Howard Jones took a sample around the tissue and sent it to the laboratory.
The Immortal Life of Henrietta Lacks tells the story of Henrietta Lacks. In the early 1951 Henrietta discovered a hard lump on the left of the entrance of her cervix, after having unexpected vaginal bleeding. She visited the Johns Hopkins hospital in East Baltimore, which was the only hospital in their area where black patients were treated. The gynecologist, Howard Jones, indeed discovers a tumor on her cervix, which he takes a biopsy off to sent it to the lab for diagnosis. In February 1951 Henrietta was called by Dr. Jones to tell about the biopsy results: “Epidermoid carcinoma of the cervix, Stage I”, in other words, she was diagnosed with cervical cancer. Before her first radium treatment, surgeon dr. Wharton removed a sample of her cervix tumor and a sample of her healthy cervix tissue and gave this tissue to dr. George Gey, who had been trying to grow cells in his lab for years. In the meantime that Henrietta was recovering from her first treatment with radium, her cells were growing in George Gey’s lab. This all happened without the permission and the informing of Henrietta Lacks. The cells started growing in a unbelievable fast way, they doubled every 24 hours, Henrietta’s cells didn’t seem to stop growing. Henrietta’s cancer cell grew twenty times as fast as her normal healthy cells, which eventually also died a couple of days after they started growing. The first immortal human cells were grown, which was a big breakthrough in science. The HeLa cells were spread throughout the scientific world. They were used for major breakthroughs in science, for example the developing of the polio vaccine. The HeLa-cells caused a revolution in the scientific world, while Henrietta Lacks, who died Octob...
Henrietta Lacks is not a common household name, yet in the scientific and medical world it has become one of the most important and talked names of the century. Up until the time that this book was written, very few people knew of Henrietta Lacks and how her cells contributed to modern science, but Rebecca Skloot aimed to change this. Eventually Skloot was able to reach Henrietta’s remaining family and through them she was able to tell the story of not only the importance of the HeLa cells but also Henrietta’s life.
HeLa cells were one of the greatest medical inventions that came about for the scientific field and yet the woman behind this medical feat is not fully remembered and honored. Her cells and tissue were taken away from her without consent and more than that, she was exploited for being black and not questioning what the doctor was doing. Her family suffered through countless years of agonizing pain in which they were misinformed about where and what her cells were being used for. Yes, HeLa cells changed the way we view medicine today, but only at the cost of creating one of the greatest controversies of owning ones body.
The Belmont Report identifies three core principles that are to be respected when using human subjects for research. The three ethical principles are: respect for persons, beneficence and justice. In the case of Henrietta Lacks each of these fundamental components are violated. The consent that Henrietta provided was not sufficient for the procedures that were conducted.
What is privacy? Well, it’s the state or condition of being free from being observed or disturbed by other people. In terms of information, it is the right to have some control over how one’s own personal information is collected and used. This is a right that has been inherently protected by the U.S Constitution, agreed upon by the Supreme Court, and yet, issues around this very topic arise every day. In The Immortal Life of Henrietta Lacks, the author Rebecca Skloot, addresses this issue in her story of the women behind the infamous HeLa cells. Her story shows that although privacy is a right that is inherently protected by the law, situations of injustice can still occur. Examples of this in the book include when Henrietta’s cells were given to Dr. Gey without any consent from Day, the situation in which Mr. Golde’s spleen was sold without his permission, as well as when the Lacks family were recontacted and mislead about the reasons they were tested years after Henrietta’s death.
And even though the Lacks family learns for the first time in 1973 that Henrietta’s cells are still alive, it wasn’t until 1991 that it became illegal for research to be done without informed consent (The Common Rule).The family of Henrietta Lacks had not been informed because there were no laws requiring it. This can lead us to believe that at the same time, many other individuals were not being fully informed as to what they were getting into. Today “many bioethicists question why the family [of Henrietta Lacks] was left in the dark.”
Ingram, David, and Jennifer A. Parks. "Biomedical Ethics." The Complete Idiot's Guide to Understanding Ethics. Indianapolis, IN: Alpha, 2002. N. pag. Print.
While doctors and scientists were making millions of dollars through HeLa research, Henrietta’s family was living in poverty. Lawrence Lacks, Henrietta’s firstborn child, says, “Hopkins say they gave them cells away, but they made millions! It’s not fair! She’s the most important person in the world and her family living in poverty. If our mother so important to science, why can’t we get health insurance?” (pg.168). Someone who disagrees with this standpoint may argue that scientists had been trying for years to develop the perfect culture medium and had a much more hands on experience with the cells (pg.35), therefore, they should be receiving the earnings from any outcomes the HeLa cells may produce. While the scientists were in fact the brains behind the scientific advances, the family should be acknowledged on behalf of Henrietta Lacks. These successes in science would not have been possible without the origin of the cells: Henrietta Lacks. For some of the family, the primary focus was not even the profit. “Since they gone ahead and taken her cells and they been so important for science, Deborah thought, least they can do is give her credit for it.” (pg. 197). Here, Deborah Lacks, Henrietta’s fourth born child, makes it clear that her primary concern is getting her mother the recognition that she deserves for her
Rebecca Skloot’s novel, The Immortal Life of Henrietta Lacks, depicts the violation of medical ethics from the patient and researcher perspectives specifically when race, poverty, and lack of medical education are factors. The novel takes place in the southern United States in 1951. Henrietta Lacks is born in a poor rural town, Clover, but eventually moves to urban Turner Station. She was diagnosed and treated for cervical cancer at Johns Hopkins hospital where cells was unknowingly taken from her and used for scientific research. Rebecca Skloot describes this when she writes, “But first—though no one had told Henrietta that TeLinde was collecting sample or asked she wanted to be a donor—Wharton picked up a sharp knife and shaved two dime-sized pieces of tissue from Henrietta's cervix: one from her tumor, and one from the healthy cervical tissue nearby. Then he placed the samples in a glass dish” (33). The simple act of taking cells, which the physicians did not even think twice about, caused decades
The book The Immortal Life of Henrietta Lacks by Rebecca Skloot, was a nonfiction story about the life of Henrietta Lacks, who died of cervical cancer in 1951. Henrietta did not know that her doctor took a sample of her cancer cells a few months before she died. “Henrietta cells that called HeLa were the first immortal human cells ever grown in a laboratory” (Skloot 22). In fact, the cells from her cervix are the most important advances in medical research. Rebecca was interested to write this story because she was anxious with the story of HeLa cells. When she was in biology class, her professor named Donald Defler gave a lecture about cells. Defler tells the story about Henrietta Lacks and HeLa cells. However, the professor ended his lecture when he said that Henrietta Lacks was a black woman. In this book, Rebecca wants to tell the truth about the story of Henrietta Lacks during her medical process and the rights for Henrietta’s family after she died.
Nelson, J.B. (1973). Human Medicine: ethical perspectives on new medical issues. Minneapolis: Augsburg Publishing House.