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Raising a disabled child
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Sibling Intervention Raising a child with a disability will have an impact, positive or negative, on the structure of a family system. Research concerning how various disabilities affect the family functions focuses primarily on the parents. Siblings are seldom included in the research, yet they can provide a stable, powerful developmental context for socioemotional development. First Friends Interactions between brothers and sisters provide children with their first socialization experiences. Young children spend large proportions of their days with siblings as their play partners and models. Children have opportunities to experience companionship, sharing, and even rivalry. Siblings typically model a wide variety of behaviors, and serve as guides to the world outside the reaches of family influence. They develop important skills that include communication and social skills as they interact with and imitate each other in their daily routines. The Family System The brother or sister of a child with a disability is affected in the same ways as their parents. They can exhibit the same emotional stages. They may experience negative feelings. They commonly feel deprived of parental time and attention. In order to accept their sibling, it is the parents’ attitudes and expectations that will determine the harmony, interactions, and ultimate relations of their children. Secure maternal attachment of the children increases the likelihood that the siblings will experience a non-antagonistic, authentic bond (Schuntermann, 2007). Many variables, such as age, gender, family size, culture, and the nature and severity of the disability affect the sibling relat... ... middle of paper ... ...l & Physical Disabilities, 22(1), 83-100. doi:10.1007/s10882-009-9171-7 Schuntermann, P. (2007). The sibling experience: Growing up with a child who has pervasive developmental disorder or mental retardation. Harvard Review of Psychiatry, 15(3), 93-108. doi:10.1080/10673220701432188 Sibshops. (2009). About Sibshops. Retrieved from http://www.siblingsupport.org/sibshops/index_html Taeyoung, K., & Horn, E. (2010). Sibling-implemented intervention for skill development with children with disabilities. Topics in Early Childhood Special Education, 30(2), 80-90. doi:10.1177/0271121409349146 Tekin, E., & Kircaali-Iftar, G. (2002). Comparison of the effectiveness and efficacy of two response prompting procedures delivered by sibling tutors. Education and Training in Mental Retardation and Developmental Disablilities, 37(3), 283-299.
History of Concerns/Goals: Onset/context: Families with children with disabilities 28% live below the federal poverty line and 2-3 times more likely to have to pay out of pocket expenses (Coppin et al., 2006). As mentioned before after the death of there father has been family dysfunction and conflict, and in clients own words “the family is “stuck in time” and in circumstances”. This reveals a long history of unsure demoralized and ever changing rules and dynamics within the family (Gilbert, Ellen,
When a loved one has a mental illness, it can be a challenge for the whole family: parents, siblings, friends and relatives. Coping with a mentally challenged child "is a shared experience for families and can affect all aspects of family functioning" (Reichman, year, pp.). From the movie, the Grape family is not only ...
According to Ms. M, when she was a child her mother was very resolute and strong-willed. Despite Ms. M’s disability, her mother expected her to do things just like other children, and was intolerant of any excuses made by Ms. M in regard to her physical state. Ms. M described her mother’s behavior as insensitive at times. She reported her mother would often be disparaging and ridiculing towards her when she would act out her frustrations that arose from being pushed too hard. Ms. M expressed that although it was difficult for her as a child, she is now appreciative of her mother’s harsh and determined parenting because she believes that without her mother’s resolve and convictions, she would not be successful today.
Unfortunately, a lot of parents may have a difficult time accepting their child, and coping with their needs and the responsibilities. From the book “The Elephant in the Playroom,” some families dealt with depression and physical and mental deterioration of their health. These struggles were shown in the story by Laura Cichoracki. Laura’s son’s name was Patrick. Patrick was a 6-years-old boy with autism. “I wasn’t eating right, I wasn’t showering regularly, I wasn’t sleeping well” (Brodey, p. 64). I also read the story told by Susan Marrash-Minnerly, which highlighted emotions that parents face. Susan also shed light on how wonderful children with special needs can be to a family, such as her ten-year-old third grader who had autism. Susan talked about how it was normal to feel angry at times, especially with the ups and downs a child’s disability may come with. “When I look back, I want to tell other parents that a child’s future is worth grieving over – but it’s not the end of the world” (Brodey, p. 75). After reading these stories, it became apparent to me that families who are raising kids with special needs, need support, kindness, and available resources. “I was fortunate to be surrounded by other moms who understood my pain…who could be supportive and emphatic.” (Brodey, p. 67). Overall, educators can use this kind of information that was shared in “The Elephant in the Playroom” about family systems and risk/resiliency by creating lines of open communication between families. This is to connect parents together that share similar struggles. By creating open communication is can allows for the teacher and parents to be on the same page when it comes to the issues affecting special needs students and
For my interview project, I pick a very unique family that isn’t normal these days. In this family, they have two set of twins that both have a disability. That means, the parents have a total of four children with disabilities in their family. The first set of twins is a two girls that just have mild learning disabilities and the second set is boys that are non-verbal with severe autism. When deciding who to interview, I choose to interview on of the adult sibling Meghan. She is part of the first set of twins with mild learning disbailities. I choose her because I wanted to know her perspective on her family and her brothers with severe special needs. During this interview, I asked Meghan many different kinds of questions relating to her family,
Their conclusion is that family dynamics have a key role in creating the context where sibling
This article mainly examines ways in which parents can deal properly with the news of being told that their child has a disability. There are a few stories in the article which emphasize the way the parents felt when they found out about their child’s disability. In most cases, the parents felt shattered, overwhelmed and completely shocked. The article explained that parents have an expectation of having that “perfect” child and when one is told that the child is not so perfect, their dreams and their lives become devastating. The reading examines ways in which to build a support system as well as ways in which to keep a balance in your life. The author indicates the importance of keeping a positive attitude when in this situation.
Toms Barker L, Maralani V. 1997. Challenges and strategies of disabled parents: Findings from a national survey of parents with disabilities. Through the Looking Glass, Berkeley, CA. Technical Report, NIDRR Research and Training Center on Families of Adults with Disabilities Grant No. H133B30076.
“Siblings that say they never fight are most definitely hiding something.” (Lemony Snicket). Although families love each other unconditionally, we all secretly categorize each other’s positive, negative, and most of all, annoying traits. Whether you live in a house with a single sibling or multiple, our opinions are always the same.While categorizing these traits we often give them nicknames as well. The attention seeker, the stealer, and the messy one are three of the most irritating.
In the textbook, Exceptional Learners: An Introduction to Special Education by Daniel Hallahan, James Kauffman, and Paige Pullen, chapter four discusses the parents and families of exceptional children. At first the chapter discusses the stages parents go through when they have a newborn that has a serious physical disability. The stages that the parents go through are shock, disruption, denial, sadness, anxiety, fear, anger, and adaption. The chapter then goes into talk about the support systems that parents need to have to keep their lives less stressful. The authors stated, “extended family members can often play a critical role in providing comfort and support to the immediate family” (Hallahan, Kauffman, Pullen, 2015, p. 69) Once the chapter talked about this they went into detail the factors that can cause stress for parents. After that the chapter talks about the siblings reactions to their
Life changing disabilities can be either a singular condition, or a combination of conditions, that can drastically change the course of an individual’s life. In most cases because we are not an island, this disability can make stronger bonds within the family, or break-up a good family foundation. These disabilities can be anything from a physical impairment to mental or intellectual issues. This can touch all members of the family, including the extended family members as well as the community.
People don’t know what is like for a family to deal with a relative who has Spina Bifida. Sandler (1997) gave insight on how the family of the affectee should handle this condition and the mutual support that should be offered. The discovery through the years show that family is not only critical but also a key factor in the wellness of the child. In addition to the importance of incorporating the three R’s – Roles, Relationship, and Responsibility into the household system. Later sharing the struggles and stress of being a parent with a disabled child with Spina Bifida. Having to cope with other external resources to try and alleviate the heightened stress such as but not limited to community, family and spiritual sections. Showing how culture
The goal of this study was to evaluate the impact having a child with Down syndrome had on the family (Povee, Roberts, Bourke, & Leonard, 2012). Povee et.al. (2012) note the early research pointed toward negative impacts on the family when a child was born with an intellectual disability, however, more contemporary research indicates a wide range of response, thought to be influenced by the type of disability. The article identified the “Down syndrome advantage” as a trend noted where families developed better coping skills and experienced lower rates of divorce and other familial stress than families of children with other disabilities (Povee et al., 2012). This study aimed to view the impact on families of children with Down syndrome from both a qualitative and quantitative approach. The quantitative
“Many of them would benefit from some type of family counseling. This is very important because they are going to play a big part in how the child with the disability will be able to adjust,” according to Kids Mental Health. “As the primary caregivers the role they play is huge and special training is often necessary and very helpful.”
The two theories that resonate must with me is attachment theory and family systems theory. A lot of the older individuals I work with grew up in institutions designed to care for individuals with developmental disabilities. In the 1960’s, parents of children born with a disability were encouraged by medical professions to place the child in an institution and forget about them. Institutions in the sixties, were a nightmare for residents living in them. The condition of the facilities was atrocious, residents were routinely psychically and sexually abused by other residents and staff, and all individuals were segregated from the community or others. An understanding of attachment theory is beneficial when working with the adults now residing