Living with Hemophilia B

1196 Words5 Pages
Joey is a very active nine-year old boy. You would never know by looking at him, but Joey is not you’re normal nine-year. He runs, he climbs trees, he wrestles with his friends; he has Hemophilia B. Joey can play hard like other boys because he does not let his hemophilia define who he is. You only see the differences when Joey gets hurt. When other children would need to put ice or band-aid on an injury, Joey has to go to the emergency room to receive medication through an IV. The first reaction most people have when they find out Joey has hemophilia is to think of how it limits him. Joey mother has raised him to think of what he can do, not what he cannot do. He has learned to weigh the risks involved with every activity he does. Joey normally decides the fun out ways the risks and he has paid the consequences for that in the past. However, he does not let that stop him from making the same choice again and again. He has been known to say, while lying in the hospital bed, "I am here now but I sure was having fun before I got hurt". That is just how Joey views his life. He feels like he can do anything any other boy can do because to him, he is normal with just one small difference. He feels most fun activities are worth the risk he will be taking to participate. Hemophilia B is a genetic bleeding disorder. When someone has Hemophilia B, their bodies have a defective or missing protein called factor IX. (Coalition for Hemophilia B) The severity levels of hemophilia range from mild to severe. Mild hemophiliacs only need treatment when they experience a major trauma or when they have surgery. Severe hemophiliacs must have regularly scheduled treatments to be able to live their normal day to day lives. Joey... ... middle of paper ... ... hemophiliac Tom Andrews, illustrates this idea perfectly in his memoir. Andrews states “hemophilia is only one of the stories my life tells”. (Tom Andrews). This is a truth all hemophiliacs need to understand. They need to understand how to not let the fact that they have hemophilia be the entire story of their life. Joey has proven in many ways that he has heard his mother's message loud and clear. Joey has become very strong, independent, and inspiring. He is a prime example of not just surviving life, but living it! I am very proud of the wonderful man Joey is becoming. I am so lucky to be able to say I am this amazing boys mother. Work Cited Coaltition for Hemohilia B http://coalitionforhemophiliab.org/vision/ National Hemophilia Foundation, Hemophilia B Assessed July 16, 2009 Tom Andrews, Codeine Diary: A Memoir of My Life with Hemophilia
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