Living A Life With Hemophilia B

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Joey is a very active nine-year old boy. His favorite things are playing outside and math. You would never know by looking at him but Joey is not your normal nine-year. He runs, he climbs trees, he wrestles with his friends but he has Hemophilia B. He plays hard just like any other boy but unlike other children, when they would need to put ice or a band-aid on an injury, Joey has to go to the emergency room to receive medication through an IV. Hemophilia is a genetic bleeding disorder. When someone has Hemophilia B, their bodies have a defective or missing protein called factor IX. (The Coalition for Hemophilia B, 1) Hemophilia B is only found in approximately 1 in 25,000 male births. (National Hemophilia Foundation. Hemophilia B Assessed July 16, 2009, 2) Joey has what is considered moderate hemophilia. The first reaction most people have when they find out Joey has hemophilia is to think of how it limits him. Joey was raised to think of what he can do, not what he cannot do. He has learned to weigh the risks involved with every activity he does. Joey normally decides the fun out ways the risks and he has paid the consequences for that in the past. However, he does not let that stop him from making the same choice again the next time. He has been known to say while laying in the hospital bed "I am here now but I sure was having fun before I got hurt". Due to Joey's condition he has become a very kind and considerate child. He is careful to not hurt other children and is very upset when others are hurt. He has a lot of friends and loves to play ball and tag with them. At recess, you can normally find him playing kick ball. Kick ball remains his favorite recess game even though he was hit in the head by the ball several month... ... middle of paper ... ...en. He still feels that the joy he experiences while participating in karate out ways the risk of getting hurt. His favorite part of karate is sparring with his instructor and learning how to defend himself. Over the years Joey's mother has been asked many questions about his hemophilia. Questions like, "how can you handle it" and her personal favorite, "don't you want to just wrap him up in bubble wrap". Her answer has always been the same. "I want him to live life, not just survive it." I am very proud of who Joey is as a person. He has continually proven that he intends to live is life with hemophilia not have hemophilia be is life. I know this because Joey is not just any little boy he is my wonderful son. Work Cited The Coaltition for Hemohilia B http://coalitionforhemophiliab.org/vision/ National Hemophilia Foundation, Hemophilia B Assessed July 16, 2009

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