Dystonia Will Not Control My Life

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Dystonia Will Not Control My Life

Have you ever wondered what life would be like with an uncontrollable muscle spasm? How would it change your life? One type of muscle spasm is called Dystonia, which causes a twitching with a group of muscles moving involuntarily. Understanding what Dystonia is can help the victim's and everyone who knows them. People with Dystonia are different then people without it because thay are sometimes not able to do the same physical activities. For example a "normal" person can drive a car, a person with spasmodic torticollis, a form of dystonia that affects the neck and shoulders, might have dystonia so badly that they can't watch the road long enough to control the car.

Whom does Dystonia affect?

Around half a million people suffer from Dystonia in the United States (O'Connor). It is estimated that 6% of the people with Dystonia have obtained accurate diagnosis and appropriate treatment (Wallace). Dystonia is a term for a group of neurological disorders that result in sustained involuntary muscle spasms in one or more parts of the body (Fact sheet). Dystonia is suspected to be a defect in the body's ability to process a particular group of chemicals, which help transmit nerve impulses (Bair). Dystonia causes painful muscle contractions and can affect the eyes, face, neck, voice and limbs (Dystonia). It is the second most common movement disorder next to Parkinson's (Dystonia).

Treatments

Dystonia is treated by the most potent nerve poison known, Botulinum toxin (Dystonia). BOTOX (Botulinum toxin) is a purified neutrotoxin complex, a purified form of the toxin of the Bacterium clostridium botulium (fact sheet). This treatment is available to the forms of Dystonia affecting the face and eyelid muscles (Fact sheet). This treatment is being used by 5,000 patients (Fact Sheet). While there is no cure the treatments relieve some of the pain and reduce some of the over active motor activity (Wallace).

Types of Dystonia

Spasmodic torticollis or S.T. is a type of Dystonia that can affect the muscles in the neck and shoulders. S.T. is the most common form of Dystonia affecting approximately 83,000 people. About three out of every 10,000 people are affected by S.T. (Wallace). The patients' neck may turn or the muscles may pull involuntary and tighten up, more so when they are tired (Bair).

Another type of dystonia is Blepharospasm is when the eyelids, jaws, lips, or tongue are involved.

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