Cystic Fibrosis Presentation

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SLIDE 1

Life threatening condition

Inherited disease

Common in Caucasian

• Affects the production of mucus, sweat, digestive juices and infertility

Nurses deal with many different types of illnesses and conditions. There are different kinds of genetic diseases. One of the most common life threatening conditions is cystic fibrosis. According to the US Cystic Fibrosis Foundation, “projected life expectancy for the patients has increased from 31 to 37 years over the past decade” (O’Sullivan & Freedman, 2009, p. 1891). Cystic Fibrosis inherits two faulty genes for the disease from both parents. This condition is most common in white people of Northern European ancestry. It affects the production of mucus, sweat, digestive juices and infertility. The mucus becomes thick and sticky, blocking the airways, which leads to recurrent infections. Cystic fibrosis causes a person’s sweat to become salty, which upsets the balance of minerals in the blood and causes health problems. The thick mucus can also block the ducts in the pancreas. The pancreas makes digestive enzymes which helps break down food. Without the enzymes, the intestines cannot absorb fats and proteins that may cause bulky stools, intestinal gas, a swollen belly from constipation and pain and/or discomfort. Men and women may experience infertility as a result of having cystic fibrosis.

SLIDE 2

• Affects the production of mucus

• Decreases sweat, digestive juices

• Increases infertility

• Cystic fibrosis affects the production of mucus, sweat, digestive juices and infertility. The mucus becomes thick and sticky, blocking the airways, which leads to recurrent infections. Cystic fibrosis causes a person’s sweat to become salty, which upsets the balance of minerals in the blood and causes health problems. The thick mucus can also block the ducts in the pancreas. The pancreas makes digestive enzymes which helps break down food. Without the enzymes, the intestines cannot absorb fats and proteins that may cause bulky stools, intestinal gas, a swollen belly from constipation and pain and/or discomfort. Men and women may experience infertility as a result of having cystic fibrosis.

• SLIDE 3

Impacts on Development

• Self esteem

• Lack of sleep

• Depression

• Anxiety

Adolescence is a time of many challenges including physical, intellectual and emotional challenges. Developmental issues face all teens but the impact is elevated for those with cystic fibrosis. Puberty is delayed with cystic fibrosis, which can affect a child’s self-esteem and elevate their sense of being different.

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