CSHCN Case Study

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Causes and Consequences
Causes
Despite the importance of appropriate transitional care there are many barriers impeding the delivery of transitional care to all CSHCN. The main barriers preventing CSHCN are cost, a difference in provider culture, provider education, and adolescent development. The first cause of poor transitional outcomes, cost, affects those who most commonly suffer from economic social determinants of health. Those with no insurance or with gaps in coverage are less likely to receive transitional care in comparison to those with adequate insurance due to inability to pay for necessary medical care (McManus et al., 2013). The issue is additionally compounded by the fact that up to 30% of CSHCN lack insurance coverage …show more content…

When children transition from pediatric to adult health care, they experience a cultural shift, which can negatively impact their perception and follow up with their care (Callahan, Winitzer, & Keenan, 2001). In pediatric clinics, patients are reminded of follow-up appointments, and providers ensure that their patients have the appropriate resources (prescription refills, medical equipment). Conversely, adult healthcare providers have a patient-centered care approach that requires the patient to collaborate effectively with the healthcare team. This change in culture can be overwhelming to CSHCN, as it requires the patients to have a complete understanding of their conditions and be well trained in personal advocacy (Callahan, Winitzer, & Keenan, 2001). Inadequate transitional care is also caused by lack of adult provider education in childhood-onset conditions. Adult providers not adequately trained in the childhood onset conditions are less likely to accept a CSHCN due to lack of education in the care and treatment of CSHCN (Cooley, 2011). This unwillingness to accept patients hinders transitional care as it delays pediatric providers from appropriately referring and transitioning CSHCN to adult clinics (Cooley, …show more content…

As many adolescents are developmentally unable to make decisions that impact their long-term care it is up to the parents or guardians of CSHCN to make the steps in implementing appropriate transitional care (White et al., 2012). Transitional care focuses on changes in autonomy; from parents caring for CSHCN to CSHCN caring for themselves. For this to happen, parents should slowly transfer responsibility of care from themselves to their children (McDonagh, 2005). This transfer of care should focus on disease management, symptom management as well as ensuring that the patient has a working understanding of their disorder and strategies to manage and care for associated issues (McDonagh, 2005). With disease education, children must be assessed for cognitive development and understanding should be assessed (McDonagh,

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