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retinoblastoma research paper by pubmed
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Hi All,
Baby Faith is a kind, happy and bright eighteen month little girl from Isoko North, Delta State, Nigeria. Her days were filled with playing with friends, discovering new wonders of life, and many other activities and dreams that children her age have the opportunity to experience. However, since the start of hospital visits, pain and swelling in her eyes until the eventual diagnosis of Retinoblasma, Baby Faith’s babyhood and happiness have been on hold. Something new was added to the life of this eighteen month old girl; she was diagnosed with Retinoblastoma (Rb) which is a rare form of cancer that rapidly develops from the immature cells of a retina, the light-detecting tissue of the eye.
It is the most common malignant cancer of
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Unfortunately, Baby Faith has lost her sight, but with our donations, she still has a bright future and life ahead of her.
Progress so far:
Team Save Baby Faith plan is to, as a matter of urgency begin her treatment in Nigeria and then when she is more stable to take Baby Faith and her mother to the UK for further treatment to include cranio-facial surgery. Also, at a later date for her parents to undergo some genetic testing to ascertain if the cancer is hereditary.
A good Samaritan and part of the Save Baby Faith Team has arranged, a medical of doctors from Texas who will treat and operate her from November 2nd in Aba, Nigeria. However, funds are needed for the surgery. Funds are needed for after surgery care; chemotherapy treatment, medication and food etc. We are also looking to set up a scholarship at a school for the blind for Baby Faith once she recovers from the operation and to also help Baby Faith’s mother to start a small business.
It is humbling to think about this fact: While you 're waiting in a long line at the store to get that new gift for your child that they just have to have, think about what this little eighteen month old baby is going through. For her family, their Christmas& New year season will be about holding on to what is really important and counting the blessings in their
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Besides donations, we also ask that you please share this page any way you can. Email it to friends and family or share it on Facebook so that we can reach out to as many people as possible to save Baby Faith and keep her alive. Please keep baby Faith alive by donating now and more importantly; please pray that she has a successful surgery and keep her family in your prayers. Please donate and help save her life. For any other support financial or non financial please send an email to
Mary Hoge had gone into labor Sunday 23rd of July 1972 giving birth to her fifth child, Robert Hoge. When Robert Hoge was born, his own mother didn’t want him. Robert’s mother Mary thought he was too ugly, that he was, in appearance, a monstrous baby. Robert was born with a tumor the size of a tennis ball right in the middle of his face and with short twisted legs. Robert was born in Australia, where he would have to undergo numerous operations that carried very high risk in order to try and live a “normal” life.
It is estimated that around a dozen U.S. children will die in faith-healing cases each year. Typically associated with Christianity, Faith healing is founded on the belief that certain people or places have the ability to cure and heal sickness, disease, or injuries. Typically this “healing” is associated by a close connection to a higher power through prayer, divine intervention, or the ministration of an individual who claims himself as a healer. Faith has been scientifically proven in the field psychology to yield benefits to health. Although faith has promised a greater wellbeing for many individual’s lives, it has yet to be a significant replacement for medication many people but relaying on faith as a means for medication.
..., born in 2004, is currently living in Peru. She was born with normal hearts and lungs. She underwent numerous surgeries such as kidney transplant, leg separation and organ reconstruction. When she was just 3 months, doctors operated on her lower extremity for the first time. With each operation, doctors hope to bring her a better and happier lifestyle.
Neonatal Palliative Care should be considered for newborns with a debilitating or constraining condition, because the rate of survival for these extremely preterm and sick newborns are low. When palliative services need to be considered, parents and family members should be counseled and educated on the services, although making a choice of this magnitude to withdraw life sustaining measures will leave a void in the hearts of many. Potential is lost and dreams are torn apart which leaves parents and family members to lament the loss. Instead of endure the pain of the loss, the family wants to hold on to the infant, when the best thing to do will be to let go.
A few months ago, she was diagnosed with leukemia and has been receiving Chemotherapy. The doctors have confessed that the Chemo has not had any impact, and found a donor match for a bone marrow transplant.
Step 1: patient education. The information that is given to the patients should be accurate, thorough, and easy to understand. We need to discuss the options with Gwen and Nicole. Apparently, they have the choice of termination or continuation of the pregnancy. If they choose to continue the pregnancy, they have the option of keeping the baby or putting it up for adoption once it’s born. In order to make an informed decision of whether to keep the baby or not, the couple need to have a comprehensive understanding of the medical conditions that the baby may have if it’s born, the responsibilities that they will face to take care of the baby, and the possible impacts of those responsibilities on their relationship and family life. The doctors and nurses have the responsibilities to deliver the information, help the couple to understand the situation, and answer any questions that they have. As nurses, we need to be unbiased and non-judgmental. Support the couples’ decision anyway we can. Ideally, information should be delivered
She was a 24-week-old premature infant. I had never seen anything so fragile yet so resilient in my life. Every time she took a breath her lungs would completely collapse. To inhale, she had to pull everything up from on her back, out from her rib cage, and inflate her lungs. She was a powerhouse! Instinctively doing everything she could to stay alive. She died hours later. She was the youngest and smallest infant ever to be born alive at Vanderbilt Children’s Hospital.We will never know her full potential, and the loss of the opportunity for someone to become an asset to society is something that I cannot tolerate. Thus, my desire to become a neonatologist was affirmed.
She showed amazing tenacity immediately after her surgery when the first thing she asked was, “When can I surf again?” Throughout her journey of recovery, she took part in a mission trip t...
Christina and the entire tribe behind her is amazing and as the pictures began appearing on Facebook from the boys and girls that were receiving their Blessing Dolls, my heart grew and grew. I knew that if you hadn 't fallen in love with these beautifully handcrafted loving little dolls than you needed too.
child who was not expected to live, take her first steps after weeks of therapy. The journey to reach my
She’s been struggling everyday of her life for the past 10 years; battling and fighting this horrible disease has made it hard on her and her family. The cancer has now metastasized, making it difficult for her to take care of everyday responsibilities and participate in daily activities. Her 13-year-old daughter is watching as her mother suffers and becomes brittle and weak.
There's a disease that lurks among young children even to this day. It's a direct result of a mutation in the genes that could result in the removal of the eye. Both boys and girls are affected, and one in every fifteen to thirty thousand babies is infected every year (Ambramson, Ch1). This eye corrupting, chromosomal abnormality shows up in about 300-350 new cases each year. It is called retinoblastoma.
When she went into surgery in St. John’s Medical Center in St. Louis, we were all there and confidant that everything would go as planned. The doctors came out about one hour into the surgery to inform us that the damage was much worse than they initially thought. They told us that they would keep us updated on her progress. Two hours later they came out to tell us that her heart stopped beating and they tried everything they could to revive her, but she had died.
In 2011, I became an aunt to an amazing little girl. My sister was just sixteen years old when she found out she was pregnant, a junior in high school. She was already into her second trimester and it was too late for her to even think about aborting the pregnancy. So her decision to keep the baby was the only decision she could make. She had my niece and struggled to finish her senior year in high school. It took special privileges and her taking classes outside the school for her to graduate with her class. She knew that her whole life was going to change the moment she decided to have the baby. There were ten other girls in her grade that got pregnant that year and six decided to abort their pregnancies, four decided to have their babies.
Infancy involves rapid growth of the brain. This is a time when learning occurs through environmental cues, crying, and most importantly, the mother or other primary caregiver. This early learning or attachment between infants and their mothers or primary caregivers has a significant impact on the infant’s development. A primary caregiver’s ability to connect with an infant has significant developmental outcomes that have an impact on cognition and learning (Snyder, Shapiro, & Treleaven, 2012).