In the Shadow of Illness, the book describes different experiences of families who have or had children with cystic fibrosis (CF). CF is an inherited disease that is passed on from the mother or father who is a carrier, but doesn’t have the condition. Doctors have figured that in this scenario, the parents are likely to have a child with CF. Individuals with CF have to take Cotazymes to help the pancreas digest food. If the person does not take these enzymes, the food goes straight through them as diarrhea. Also, the person’s lungs are affected by a thick mucus that must be removed or thinned before it clogs. Doctors recommend the patient to perform daily breathing exercises that prevent the mucus from thickening; for example, swimming …show more content…
Mrs. Farrington was constantly worrying about allowing him out of the house or be with other kids. The hospital constantly kept correcting this behavior by stating that she needs to allow him to be like other kids but sometimes it was her first instinct to prevent hospitalization. Mainly Cody is hospitalized due to weight loss or to clean mucus out of his lungs completely. Unlike Mrs. Farrington who has to deal with the medical treatments daily, her husband is in more denial. When Cody becomes sick he understands to call the hospital but Mr. Farrington has no understanding of Cody’s medicine and such. Though studies have shown that children who are cared by their mother recover faster and are discharged earlier, Mr. Farrington behavior is very concerning (Family-Centered Care and the Pediatrician’s Role, 692). He avoids the topic overall by working constantly. Mrs. Farrington finds this behavior to be strange because if something negative happened to her, Mr. Farrington needs to know these treatments, so they aren’t neglected or performed incorrectly. However, this arrangement between the parents is not very healthy because the stress of Cody condition is completely Mrs. Farrington burden. This makes Mrs. Farrington struggle giving her other children the fair attention they deserve as …show more content…
Farrington strives for the entire family to understand why Cody constantly goes to the hospital. Mrs. Farrington has noticed in her children that they have different comprehensions and involvement of Cody’s condition. Holly, who is thirteen years old, understands everything her mom knows about the disease. However, Heather, who is ten years old, doesn’t ask many question. They both understand that Cody needs to take certain enzymes for every time he eats and is required to take vitamins. They also understand that when Cody gets a cold, it is taken very serious and that he might need to go to the hospital. Mrs. Farrington has never explained to her children that Cody has the potential to die, but she feels they are all too young to understand or cope with this knowledge. However, if Cody did come to a point that he could die, the siblings may struggle coping even more unless their mother was honest about the potential situation. She would like them to treat Cody as any other sibling would without that concern. However, the children feel that Cody is
How do the issues facing those doing strategic planning differ from those doing tactical planning? Can the two really be
Accurso (1997) found that at birth the lungs of CF babies are normal but soon, many become infected with bacteria. This bacterial infections cause chest exacerbations in the patients. A 14-day course of intravenous antibiotics is usually given to the patients (CF Trust, 2011). CF patients constantly seek medical attention for various reasons and in most cases, because of the exacerbations. However, hospital-based care is not always favoured by the patients, as it is disruptive for them and their families, taking patients away daily, work activities and social lives for considerable amounts of time (Sequeiros and Jarad 2009). Both consultants and physiotherapist encourage less interruptive patient-administered homecare....
The denial of child care for her two children’s has added fear, helplessness, hopelessness, loss, of control and guilt which impacts Katy health and contributed to worsening of her health. Katy was experiencing a situational crisis because of her medical condition and her concern to provide for her children. It occurs when an individual produces an overwhelming response as they confronted with a stressful event. Factors that contribute to Katy crisis are high demand to provide for her children, denial of child care services, medical condition, and a single parent. These factors play a critical role in her health outcome and progression of her disease and psychological state.
Along with the problems of chronic illnesses themselves, many other problems may come. Treatments and medications are just the beginning of things when it comes to problems with illnesses. With cystic fibrosis, you start out with a high number of medications and treatments to begin with. The older you get and the worse your condition gets, the more you take. (“Psychological impact,” n.d.) Many struggles come along with taking these medications and treatments. When children are first diagnosed with cystic fibrosis, they are typically very young. From the beginning, there are many medications and treatments that needed to be taken and done. Sometimes, trying to get children to take medications and treatments is like pulling teeth. The medications for cystic fibrosis are extremely important. If cystic fibrosis patients miss medica...
Also, the whole family needs to come to term with the health condition, make change in priorities and schedule, and keep the family. For example, it can be much more stressful for a young or a newly married couple because they may have more experience to overcome life's difficulties. As a result, as with individual maturation, family development can be delayed or even revert to a previous level of functioning (Hockenberry, p 762.) Therefore, health care providers need to apply family development theory while planning care for a child and family with chronic health condition. Indeed, family centered care should be a part of that intervention. Parents and family members have huge and comprehensive caregiving responsibilities for their chronically ill child at home or at hospital. Moreover, the main goal taking care of chronic ill child is to “minimize the progression of the disease and maximize the child’s physical, cognitive, psychological potential” (Hockenberry, p 763). Therefore, it is essential to family being part of the child care to give highest quality of care. On the other hand, we are as a part of the health care provider need to give attention to all
Soon. The main goal of the work is to explain Mrs. Soon that her grandson needs a help of specialists. The plan consists of the 4 steps. Listen to the story of Mrs. Soon with empathy and try to understand her perception of the problem. Explain and try to share our perspectives. Acknowledge and discuss the differences and similarities of her and our group’s understanding of the problem. Recommend: to give examples of other kids with same issues. Negotiate and see if Mrs. Soon accepts the proposed plan for helping her grandson to receive services. This plan will help to provide the consultation with Mrs. Soon and to get positive
Dawn, a four year old toddler, has started to act out and have behavioral issues outside of home. Recently Terry and Bill had their second child, Darren, who was born with a congenital heart condition. With this addition to their family many changed have occurred, and as a result have affected Dawn’s behavior.
Health as a Social Construction In my essay, I aim to find out why social construction affects the health of our society. Ill health may be defined as 'a bodily or mental state that is deemed undesirable'. This means that health is the condition of the body both physically and mentally. Social construction of health refers to the way health varies from one society to another.
A person is either a carrier of the defective CF gene, not a carrier of the CF gene, or will have cystic fibrosis. If a person has cystic fibrosis that means that the defective CF gene was received from each parent. If a person does not have two defective CF genes but does have one defective CF gene then he/she is a carrier of cystic fibrosis. There are more than seventy thousand people leaving with this disease worldwide, and most are diagnosed by the age of just two (“About Cystic Fibrosis,” n.d.). That is a very large population so as a nurse it is beneficial to know what this disease is and how and why it
Parker, Steve. "Chronic Pulmonary Diseases." The Human Body Book. New ed. New York: DK Pub., 2007.
In health care, there are many different approaches throughout the field of nursing. When considering the field of family nursing, there are four different approaches to caring for patients. This paper will discuss the different approaches along with a scenario that covers that approach. The approaches that will be discussed include family as a context, family as a client, family as a system, and family as a component to society. Each of these scenarios are approach differently within the field of nursing.
Iannelli, M.D., Vincent. "Parenting Styles." About Pediatrics - Pediatric Parenting and Medical Advice. 13 Dec. 2004. Web. 21 Jan. 2011. .
Sociology of Health and Illness The sociological approaches focus on identifying the two sociological theories. We critically analysed the biomedical model and doctor-patient relationship. We also evaluated how the medical professionals exercise social control and the medical professional’s contribution to ill health. The difference between society and health is studied by sociologists in relation to health and illness.
The poor food choices that men and women make is the cause of many illnesses, disease and chronic health conditions. Men and women generally have different thoughts and choices on the topic of healthy food. People’s bad health may be genetically occurred or their exposure to their past nutritional education was not helpful, but their bad health is primarily based upon the poor choices that the individuals choose in daily life.
Children need holistic, constant, organized, and family-focused care along with empathy” (Alavi, Bahrami, Boroujeni and Yousefy, 2015). Being a pediatric nurse in general, one must always be an advocate for the child as well as one’s own family. Using nursing techniques and planning care is important when making decisions for what may be best for the patient, family and planning for the fastest recovery possible. Being a pediatric nurse would also include delegation and coordination of care to other nurses to assure children have the time needed as children may need more of a nurse time than an adult would. When a child becomes sick and in the hospital; the nurse is there to use one’s own knowledge and Erickson’s theory to obtain the psychosocial stage of that child so that the best care can be provided.