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The research questions were essential to guiding the explorative study. They are directly stated and identifiable and reflect the information provided in the literature review.
Research Hypothesis
Due to the lack of information regarding the perspectives of women with dementia on the care they receive from their adult daughters, there is not sufficient data to formulate a hypothesis. The research was aimed more towards building a knowledge base and developing a theory than towards testing a hypothesis. The exclusion of a hypothesis is appropriate based on the exploratory nature of the study.
Research Study Design
The research design and tradition are not identified within the report. It is mentioned though, that the data analysis followed the guidelines of Lofland and Lofland’s (1995) publication of Analyzing social settings: A guide to qualitative observation and analysis. The recruiting and sampling process included posting flyers out in the community and contacting health professionals in contact with women with dementia and/or their families. After recruiting a sample group, participants were selected based on the criteria including consent from both parties, the ability to speak English, at least 2 hours of care per week provided by the daughter, a score of 17 or higher on the Standardizes Mini-Mental Status Examination (SMMSE) by the mother, and good verbal and comprehension skills.
If both the mother and daughter consented to participation than “an in-depth, focused interviewing approach,” was used to collect data (Ward-Griffin, Bol, & Oudshoom, 2006). Field notes were transcribed immediately after each interview, and memos and notes were used to keep track of the researcher’s thoughts. Team analysis was conducted in orde...
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...university. The researchers succeeded in protecting the rights of the participants.
Conclusion
The report was well written, organized, and provided sufficient detail for a critical analysis. Each of the researchers has substantial qualifications and credibility which leads to confidence in their findings and interpretation of the data. The study was limited by the small sample, but the findings still provide insight into the perceptions and experience of older women with dementia (Ward-Griffin, Bol, & Oudshoom, 2006). The study contributes to the development of practices and policies that take into consideration the perspectives of care receiving by those with dementia. By eliciting change in health care practice, nurses have the potential to “address older women’s’ sense of disentitlement and marginal social status” (Ward-Griffin, Bol, & Oudshoom, 2006, p. 139)
Alzheimer’s disease affects populations in both cities and rural areas. Although only 19% of older adults live in rural areas, up to one-third of rural populations are comprised of older adults (Sun, Kosberg, Kaufman, & Leeper, 2010). In addition to limited access to and suspicion of healthcare and social services for older adults and their caregivers, social isolation plays a great role in rural areas, where opportunities for engagement and interaction may be unavailable or inaccessible (Sun et al., 2010). Healthcare workforce shortages, while present far and wide, are intensified in rural areas and can severely limit a family’s choices when caregivers struggle to meet the needs of individuals with Alzheimer’s (Sun et al., 2010). Research suggests a high level of depression in both persons with dementia and spousal caregivers in rural populations (Haley et al., 2008). Research also suggests the loss of language capacity among individuals with Alzheimer’s limits the individual’s independence.
Butler, R. (2008). The Carers of People with Dementia. BMJ: British Medical Journal , 336, 1260-1261.
...tion with the outside world and loss of their life style. Communities need to be educated on dementia so that as to include and create activities they can join in. The residential homes decision makers need to monitor the cares’ behaviour as they and address issues within their working environment to improve and keep everything up to standard. The government need to implement and review their policies to make ensure quality care in residential homes. According to United Kingdom Health and Social Care (UKHCA), (2012) and The National Institute for Health and Care Excellence (NICE), have been working on introducing new guidance which will help dementia patient to get more funding to live in their own homes and avoid living in residential home which is a positive move as people will still enjoy the comfort of their homes and receive excellent care.
(Davidson, F. G.) Due to the nature of dementia being a neuropsychological disorder, those affected by the disease tend to look like they will not require much care, which, in reality, they often require more care than the caregiver originally expected, leading to stress and burnout. Another effect caused by this can be the caregiver blaming themselves by feeling like they are failing to give proper care, which, in reality, can often be very far from the truth. If the caregiver does not receive help from anyone else, the task of watching over the victim becomes a daunting twenty for hour task. Sometimes, the caregiver won’t be allowed quality sleep. Over 66 percent of home caregivers suffer from some form of psychological or physical illness. The most common illness that is resulted from giving care to Alzheimer’s disease is depression. The caregiver needs to monitor their emotional well-being as well as the well-being as the person that they are giving care to. Usually, giving care to those with dementia is actually more stressful than giving care to those with cancer. When the caregiver is a family member and not a professional, the emotional toll is often even greater. It is important for caregivers to remember that they need to take care of themselves first and
Jenny Lee, Elsie Hui,Carolyn Kng and Tung Wai Auyeung (2012). Attitude of long care staff towards dementia. International Psychogeriatrics, 25(1), 140-147.
Dementia is a difficult disease to understand and handle. A major problem involving these patients are caregivers that are not properly trained and educated to care for people with the disease resulting in issues such as neglect and abuse.
People with dementia may be subject to mistreatment and abuse in the community or in care homes and hospitals. Those with dementia can be more vulnerable to abuse as they may find it difficult to discuss their feelings and experiences or remember what happened to them. Dementia can also make it harder to detect abuse.
Due to an ageing population , The Francis Report recommends the introduction of a new status of nurse, the “registered older persons nurse”. One of the illnesses linked in with this is dementia, and multiple factors relating to dementia are having an impact on how nurses are trained and their deliverance of services. In 2013, the Royal College of Nursing (RCN) began a new development program to transform dementia care for hospitals. There aim is to develop skills and knowledge related to dementia, the roles of all those who are involved, understanding the development of action plans that identify key changes.
Alzheimer’s disease is a serious disease which causes people to behave in a challenging way for their family and caregivers to manage. These behaviours are caused by damage to the brain that leads to psychological and functional impairment. Due to this impairment the people with AD are often neglected and labelled by the society. Family caregivers play a massive role in the care of their loved ones with AD. Patients and family caregivers often experience stress in dealing with all the obstacles that Alzheimer’s disease put them through.
Ferri et al. (2006), 4.6 million people throughout the world are diagnosed with dementia every year, and the number of people in Europe suffering from dementia will increase to 13 million in 2040; and Wimo et al. (2003) estimates that approximately 63 million worldwide will suffer from this illness by 2030. This has crucial implications since it is an illness that is often associated with long-term care (LTC) in its later stages. However, while long-term care is an important consideration, the quality of life and how people with dementia cope with the illness are also of much concern but unfortunately less dealt into. Dementia can undermine a person’s self-worth and esteem, and affects most aspects of daily living (Preston, Marshall, & Bucks, 2007) affecting one’s quality of life (QOF).
Caring for dementia involves a lot of patience and understanding. It should be dealt with audacity and flawlessness to ensure the vulnerable adults’ well-being. Aiding at home or care home required carers to be at their best, physically and emotionally. The responsibility can be distressing but it is rewarding as well since helping dementia adults in their day to day activities is a significant matter for them. However, carers need a pause as over duty can result to substandard nursing. The big question is: who take care for the carers of people with dementia?
Aside from the prepared research questions, the researchers also asked Ms. Bernadette Dimaculangan, area chair of NSTP of DLSL, other questions related to the topic of the research. The other questions and Dimaculangan’s corresponding answers are listed in Table 6 below.
What if one day you were unable to recall what you had previously experienced? Surrounded by people who refer to you by a name that has no meaning to you, confused by the gibberish spoken by others. How would you cope with not knowing what this so called “family” of yours is? [1] According to the World Health Organization this is a reality to roughly 47 million people. [1] Dementia is a grouping of disease in which there is a deterioration in memory, thinking, behaviour and the ability to perform everyday activities. Symptoms range from memory loss, word finding difficulties and impaired judgement. Dementia doesn’t only affect the person diagnosed with it negatively, but caregivers as well. It is a disease which needs proper funds and research to help improve the life of those diagnosed with it.
A two-phase sequential explanatory strategy was used for the study. The two- phases are ordered in the sequence that was proposed as priority was placed on quantitative data collection and analysis. In the second phase, qualitative data was collected and used to refine the results of the quantitative data presented in the first phase.
The research was designed using qualitative model based on exploratory design. This was done to facilitate multi-faceted study with a broader prospective. Basic percentage analysis was done to supplement qualitative analysis. The study was conducted with the help of a Questionnaire. To deepen the understanding data was collected from a variety of books, Internet web pages, and articles of different kinds conducted was descriptive in nature. Descriptive research includes survey and facilitating enquiries of different