For many years, caregivers and families have required collaboration, training and support, intellectually and emotionally, to help people with physical disabilities produced by illnesses or due to age. There are some associations which provide activities, programs and services to enhance the well-being of the persons with recognized special needs and their families. The principal objective is to provide access to programs to improve the quality of life. An example of this association is The Amyotrophic Lateral Sclerosis (ALS) association. It was co-founded by patient Ann Smith in August of 1987. Ann Smith is the wife of the deceased baseball player of Lou Gehrig. He abruptly retired from baseball after being diagnosed with ALS (Honoring a Baseball Legend: 75th Anniversary of Lou Gehrig 's Farewell Speech, 2014).
ALS Association is a national nonprofit health organization dedicated to fight against ALS. The ALS Association focuses its priorities to help people with amyotrophic lateral sclerosis and investigate thoroughly find a cure for this fatal disease.
Every day, an average of 15 people is newly diagnosed with ALS. As many as 30,000 Americans may currently be affected by ALS. Annually, ALS is responsible for two deaths per 100,000 people. For that reason many clients receive aid from this association which includes support for patients, families, donors and Volunteers. This program help with support groups, case management, respite care, medical equipment loan, and educational services.
The Regional Care Managers perform Care Services to help the Chapter fulfill its mission of patient care, advocacy, awareness, and funding research. Each has a designated geographic area of Florida ...
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...ocal library or bookstore and study a medical book, or they check the Internet for information about ALS. What they find can be genuinely frightening, bleak, and grim. Eventually, they will discover the phone number of the National Office of The ALS Association or that of a local ALS Association chapter or Certified Center. These resources can provide information that is positive, will answer their questions, ease concerns and direct them, to national resources” (Ciechoski, 2007).
ALSA Finances and Annual Report. (2015). Retrieved October 22, 2015, from http://webfl.alsa.org/site/PageServer/?pagename=FL_2_Finances.html
Ciechoski, M. A. (2007). Living with ALS (Revised. Ed.). Calabasas Hills, CA: ALS Association.
Honoring a Baseball Legend: 75th Anniversary of Lou Gehrig 's Farewell Speech. (2014). Retrieved October 22, 2015, from http://www.lougehrig.com/
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