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Scenario of hospice patient
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To “live as fully and comfortably as possible” is a key phrase in the care and treatment of a patient under hospice care. Hospice care focuses on the comfort and quality of life for a person with a terminal illness. The focus is not on a cure. A hospice care provider wants to help the patient be as pain free and comfortable as they can be, so that they can live the rest of their life as fully as possible. Unfortunately, more often than not, patients with terminal illnesses are viewed to be too frail to participate in occupations (Russell, M., & Bauh-Lampe, A., 20016). It is also true that people facing the end of their life feel helpless or depressed, lose their ability to participate in a lot of the daily activities they once enjoyed, and experience a loss of dignity. (Badger, S., Macleod, R., & Honey, A. 2016). However, with hospice care, many patients are able to find some degree of comfort, safety and control over their lives during their final days.
Hospice care can be provided in a variety of settings – in a hospital, in a facility devoted to
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In 2015, females made up over half of the hospice Medicare beneficiaries at 58.7%. It was also shown that in this same year, almost 65% of hospice Medicare patients were over the age of 80. A staggering 86.8% of the Medicare patients were Caucasian, and cancer was the principal diagnosis at 27.7%.
For the purposes of this paper, I focused on a freestanding facility that has a portion of its services devoted to hospice care – Signature Hospice, Home Health, Home Care. Signature Hospice is headquartered in Wilsonville, OR, but has locations in not only Oregon, but Washington, Idaho, Utah, and Wyoming. (Signature Hospice, Home Health, Home Care, 2017). For this research paper, I interviewed Megan Resetar, Administrator, and Amber Sekreta, Volunteer Coordinator, from the home office in
Final Gifts, written by hospice care workers, Maggie Callanan and Patricia Kelly, includes various stories detailing each of their life changing experiences that they encountered with their patients. Hospice care allows the patient to feel comfortable in their final days or months before they move on to their next life. This book contains the information considered necessary to understand and deal with the awareness, needs, and interactions of those who are dying. Not only are there stories told throughout the book, there are also tips for one to help cope with knowing someone is dying and how to make their death a peaceful experience for everyone involved. It is important that everyone involved is at as much peace as the person dying in the
Hospice care is there for someone during the final stages of their life. They treat people who suffer from a life shortening illness or injury. Hospice provides medical care, emotional care and support during this hard time. Hospice is not only there for the patient, but they are also there to support and uplift the family. Hospice provides care in the home, nursing homes, hospitals and long term facilities. Hospice care is available to
When you think of home care for a loved one, you want comfort and convenience with quality of life. A misconception of palliative care is that it is equivalent to hospice care, which concentrates on end of life. However, palliative care is now being offered to patients whether it begins early at diagnosis or throughout ongoing treatment. It is no longer limited to medical settings as more health care agencies are now offering it in home care. Think of palliative care as “comfort” care during any stage of illness.
The history and name hospice got its name from hospitality. In 1967, Dr. Cecily Saunders evented the first hospice was which was used for people who were terminally ill. However, the Hasting center Report, shows that in 1973, hospice emerges in the United State, and was used as a concept of care and not a place of care. Hospice upholds life and neither speeds nor postpones death. They offer palliative care to people with end of stage of life regardless of their age, gender, nationality, race, sexual orientation, etc. Hospice believes that proper care to the community will help patients and their families to be mentally and spiritually prepared for the death of their love ones. They provide 24/7 care in either home or facility base setting. The care of hospice is for patients who have chronic illness and have six month or less to live (NHPCO, 2012). Opiates mediation is used to treat pain. Hospice offer palliative care service to their patients to improve the quality of life. The primary goal is to control patient’s pain, symptoms management, and improve the quality of life (NHPCO, 2012). Hospice also provides bereavement services for families who have lost their love one. This is to help the family to cope with death. The bereavement services last for about a year or thirteen months after patients die. Families are offered individual counseling or support group (NHPCO, 2012).
According to Shi and Singh (2015), end-of-life care deals with preventing pain and stress for terminally ill patients and their families. The focus of this type of care is patient dignity and comfort, which
Even though many dispute over the value and usefulness of treatment and care of terminally ill patients, the debate for the most useful care and pain reliever for these patients is the question that most patients, and their families, have to ask themselves daily. Wesley J. Smith suggests that Hospice care for patients with such a horrible illness is a beneficial program and that many patients need to utilize it. Smith also recommends that a valuable care option would be to “allow the terminally ill to enter hospice care without having to give up life-extending or curative treatments”. (Smith 3) With this statement, Smith demonstrates a way that these ill patients can be provided with treatment and also care for the patient’s quality of life.
To implement the designated rooms for hospice patient we must create what we want our ideal room to look like. During the time of planning the chosen units should receive education on caring for hospice patients. These newly designed rooms should have several windows to allow natural light and paint the walls blue, which are Upstate’s colors. This room should have a couple of shelves for the patient’s family to bring belongings from home for the patient. This room should have a ceiling lift that goes from the patient’s room to the bathroom to help safely transport the patient. Once, the designing process is complete the materials should be ordered (Stall, 2012).
End of life care (palliative) was first seen by a physician Dame Cicely Saunders, “who began her work with the terminally ill in 1948 and eventually went on to create the first modern hospice St. Christopher’s Hospice in a residential suburb of London” (History of Hospice Care, 2015). Saunders then introduced the idea of specialized care for the dying to the United States during a 1963 visit with Yale University. After she made the introduction palliative later became the development of hospice care. In today’s society, hospice focuses on, "caring, not curing and, in most cases: care is provided in a patient's home. The care of a patient can also be provided in freestanding hospice centers, hospitals, and nursing homes or other long-term care
S., Kuchibhatla, M., Tulsky, J. A., & Johnson, K. S. (2013). Association of hospice patients ' income and care level with place of death. JAMA internal medicine, 173(6), 450-456.
Palliative care encompasses advanced care planning, legal issues, and ethical decisions which help ensure that the patient maintains their autonomy (Buttaro, Trybulski, Bailey & Sandberg-Cook, 2016). The problem of advanced planning should be discussed with every adult patient with the first exam and then yearly. (Buttaro et al., 2016). Knowing what the patient’s wishes are and having affairs in order is important for every family to have a plan for when the time comes. The Terri Schiavo court battle that brought patients’ rights for an end of life, palliative care and persistent vegetative states and how life and death are determined (Caplan, 2015). There is no standard to how the end of life decisions is made and living wills, and advance directives are not common place for everyone (Caplan, 2015). Palliative care can offer the patient and their family an improved experience in end of life care with patient-centered care (Buttaro et al., 2016). The beginning is understanding what the patient's wishes, which is best achieved with the patient before any disease processes make the patient unable to participate (Buttaro et al., 2016) are.
Kolcaba K., Y. (1997). Comfort care: A framework for hospice nursing. American Journal of Hospice
In Stephen R Connor’s article “Development of Hospice ad Palliative Care in the United States,” Connor reviews the history and growth of hospice and palliative care in the U.S., the Medicare benefit’s relation to hospice, challenges that these end-of-life care services are facing, and strategies to improve the quality of hospice and palliative care.
Key Messages The key messages from this week’s readings build a cognitive development of diagnosis of terminal illness, grief and bereavement and reveal the best practice of palliative care, acknowledging the importance of person-centred care to manage terminally ill patients’ pain and other distressing symptoms in order to ensure the quality of life in challenging times. As core members of health care professionals, social workers are trained to provide psychological, social and spiritual support for patients and their families. Thus, social workers need to have requisite knowledge, expertise and experience dealing with grief, mourning and bereavement to provide specialised care and support to cope with a bereaved individual’s emotional and behavioural responses. Additionally, according to previous empirical literature, death is irreversible, non-functional and cessative as well as universal.
During hospice process, patients start to forget things and they need someone to remind them of the date, or the name of someone. Most family members place photo frame of patients’ husband, grandchildren, and an important events that had taken place in their lifetime at their bed side as a reminder. Helping patients look through their wedding photos help them remember the time they were excited to get married. Some people have a calendar and watch place around the house for patients to remind them of date, and time. As people age, their memories start to fade, they do not remember some of the events from their past, and they constantly ask for the same thing multiple times. In hospice’s patients (P), how does reflecting on old photos (I) compare