COPING WITH EARLY ONSET OF DEMENTIA: A QUALITATIVE STUDY
1 Introduction
Many countries globally are faced with unprecedented demographic changes from high mortality and fertility to low mortality and fertility, giving rise to an ageing population. Population ageing is profound and enduring, and has major consequences and implications for all facets of human life. With a larger proportion of older people, one of the major concerns is health and health care. The health of older persons generally declines with age and some illness are more likely to be associated with older people. One of such illness is dementia. As the life expectancies of the general population have dramatically increased since the turn of the century, more and more people are at risk of developing a dementia (National Institute of Aging, 2000).
Dementia is affecting an increasing number of people every year. According to
Ferri et al. (2006), 4.6 million people throughout the world are diagnosed with dementia every year, and the number of people in Europe suffering from dementia will increase to 13 million in 2040; and Wimo et al. (2003) estimates that approximately 63 million worldwide will suffer from this illness by 2030. This has crucial implications since it is an illness that is often associated with long-term care (LTC) in its later stages. However, while long-term care is an important consideration, the quality of life and how people with dementia cope with the illness are also of much concern but unfortunately less dealt into. Dementia can undermine a person’s self-worth and esteem, and affects most aspects of daily living (Preston, Marshall, & Bucks, 2007) affecting one’s quality of life (QOF).
Traditionally, research into dementia has hitherto do...
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The sixth leading cause of death in the United States, Alzheimer’s disease afflicts approximately 5.2 million persons age 65 and over (Alzheimer's Association, 2012). Rapid growth of the older population as the Baby Boomer generation ages will cause unprecedented increases in the number of individuals with Alzheimer’s. It is estimated that by 2025 the number of Wisconsin residents with Alzheimer’s age 65 and older will increase by 30% to a projected total of 127,000 (Alzheimer's Association, 2012).
According to WHO – World Health Organisation “there are 47.5 million people affected by Dementia worldwide and there are 7.7 million new cases every year”
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Dementia is a disease which causes mental debility and affects one’s way of intelligent, attentiveness, recollection and problem-solving (NHS, 2013). As a result of dysfunction of brain cells in some parts of the brain it affects the thinking process then dementia occurs and it usually comes with age (Ibid). It is estimated that 560 000 people suffer from dementia in England and as a result the NHS and Social Care spend about 3.3billion (National Audit Offices)
Alzheimer’s disease was first defined in 1906 by a German psychiatrist, Alois Alzheimer. Alzheimer's disease is the most common form of dementia. It is a progressive brain disorder in which the nerve cells in the brain gradually die off. It is estimated that 26 million people world-wide are afflicted by Alzheimer’s and of those, approximately 4.5 million live in the United States. It is said to be the seventh leading cause of death in the USA and the fifth leading cause of death for those over age 65. Seventeen percent of women and ten percent of men age 55 and older can expect to develop Alzheimer’s (apa.org, 2009). Researchers report that this disease is more prevalent in African Americans and Hispanics than in whites (Crandell, Crandell, and Zanden, 2009, p. 578).
Dementia is a pertinent public health issue in Australia. Whilst there are various types of Dementia, they all significantly impact an individual’s quality of life. The consequences of Dementia extend to carers and family and this, together with increasing prevalence, inconclusive and probable preventive measures and absence of a cure, indicates the need for further research, to enable Australia to combat the significant public health issue that is Dementia.
While there is little difference between dementia and Alzheimer it is important to distinguish the two. Dementia is, “ a general term for a decline in mental ability severe enough to interfere with daily life” (Alzheimer Association, 2014). While Alzheimer is, “is a ...
In most facilities an initiative lifestyle has been organized to give people with dementia a voice in how and where they are cared for (White). This is how things should be everywhere in the world when it comes to people with dementia. People affected by this disease don’t need people to tell them what to do or make decisions for them, they need the freedom to do it themselves so they don’t give up. Although incapacity is common, many persons with dementia are capable of making their own medical and research decisions (Kim, Karlawish, and Caine). At the early stages of dementia, a will needs to be made so medical wishes can be granted. When people are given the freedom of choice, they are much happier, they live longer, and they have a better attitude about the disease they are suffering from. Individuals that get dementia did not get it by choice, but they live through it day by day with strength and the ability to live
The Diagnostic and Statistical Manual of Mental Disorders (DSM) has been used for decades as a guidebook for the diagnosis of mental disorders in clinical settings. As disorders and diagnoses evolve, new versions of the manual are published. This tends to happen every 10 years or so with the first manual (DSM-I) having been published in 1952. For the purpose of this discussion, we will look at the DSM-IV, which was published originally in 1994, and the latest version, DSM-5, that was published in May of 2013. Each version of the DSM contains “three major components: the diagnostic classification, the diagnostic criteria sets, and the descriptive text” (American Psychiatric Association, 2012). Within the diagnostic classification you will find a list of disorders and codes which professionals in the health care field use when a diagnosis is made. The diagnostic criteria will list symptoms of disorders and inform practitioners how long a patient should display those symptoms in order to meet the criteria for diagnosis of a disorder. Lastly, the descriptive text will describe disorders in detail, including topics such as “Prevalence” and “Differential Diagnosis” (APA, 2012). The recent update of the DSM from version IV-TR to 5 has been controversial for many reasons. Some of these reasons include the overall structure of the DSM to the removal of certain disorders from the manual.
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“Difficult, depressing, and tragic” are a few of the descriptions generally associated with illness. Those who suffer from dementia, especially, undergo a realm of these characterizations. With this adversity in mind, most people generate a basic understanding based on education rather than personal experience. It is this preconception that can prevent us from gaining a true insight of one’s reality.
Dementia is an organic brain syndrome which results in global cognitive impairments. Dementia can occur as a result of a variety of neurological diseases. Some of the more well known dementing diseases include Alzheimer's disease (AD), multi-infarct dementia (MID), and Huntington's disease (HD). Throughout this essay the emphasis will be placed on AD (also known as dementia of the Alzheimer's type, and primary degenerative dementia), because statistically it is the most significant dementing disease occurring in over 50% of demented patients (see epidemiology).
There are four main types of dementia with AD being the most widespread form. It ac...
Dementia is a major neurocognitive disorder that interferes with the independence of the elderly by inhibiting memory and thinking skills. Fifty to eighty percent of dementia cases constitute of Alzheimer’s diagnoses; consequently Alzheimer’s disease is the most common type of dementia and currently affects 5.2 million Americans. Most of these cases are patients above the age of 65 and by 2050; 13.8 million Americans in total will suffer Alzheimer’s due to aging of the general population, specifically the baby boomers. Total cost to society ranges from $157- $215 billion (Associated Press). Some would assume the cost of Alzheimer’s to be incurred by pharmaceuticals or medical costs, however RAND Corp suggests dementia cost to society is from care rather than treatment. Therefore, assistance provided by informal providers and directs caregivers incur a majority of the financial and social cost. Currently, the workforce does not have the capacity or training to care for these unique patients; the delivery system needs to address Alzheimer’s as the population ages and more and more fam...