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Importance of confidentiality in healthcare
Privacy and confidentiality for patients
Articles on the importance of confidentiality in the medical field
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For the purpose of this case study, I will specifically examine the ethical issues of medical paternalism and deception-to-benefit-the-patient and whether their use can be viewed as justifiable. The act of “overriding a person’s actions or decision-making for his [or her] own good” or paternalism exercised by Dr. Haveford by choosing not to disclose all information to his patient can be evaluated through both the empirical and moral arguments against paternalism argued by Alan Goldman’s “The Refutation of Medical Paternalism” (Vaughn). It is mentioned that the doctor withheld information about clinical trials because he did not what to overwhelm the patient or cause her to experience emotional harm and, thus, he was acting in the best interest of his patient despite being aware of her value for honesty in their …show more content…
Therefore, despite having prior knowledge of the uncertainty that arouse in Janet when presented with a lot of information, Dr. Haveford should have honored her right to self-determination with awareness that disclosing all information would not cause harm to her. In addition, from the moral counterargument against paternalism it is made apparent that harm could come to the patient due to a physician honoring their autonomy by disclosing information, but despite the possibility of harm overriding their right is still not warranted (Goldman). When Dr. Haveford came to the conclusion that the disclosure of all information about clinical trials would ultimately harm Janet, he failed to take into account the “most inclusive notion [that] harm is relative to the values and preferences of the particular individual” (Goldman). Hence, what may be considered harm to him
A basic definition of confidentiality is that information about a patient is not discussed openly (Edge and Groves, 2007). This ethical principle became an issue when the government gave medical facilities lists of people who were in the study. Again, the patients were not informed that they would not be able to
One day while doing his job, a physician used a used swab that was possibly infected with HIV on another patient. When looked at by certain people, the doctor did the correct thing by telling his patient that he roused a swab on him/her. However, the chances of this patient getting HIV was substantially low, and he should have waited for the patient to develop symptoms, which would have been rare, before telling the truth. As stated by Michael Greenberg, “he might have done better by keeping his mouth shut.” If the doctor did lie, he could have lied to protect himself, the quality of life of the patient, and his ability to help others with their lives. If he had not told the patient that he used the swab on him/her, he/she would not have had to live in fear of getting HIV. Because of this decision of truth telling, the doctor lost his job, money, confidence, and also affected someone’s quality of life.
Those who were affected by the testing in hospitals, prisons, and mental health institutions were the patients/inmates as well as their families, Henrietta Lacks, the doctors performing the research and procedures, the actual institutions in which research was being held, and the human/health sciences field as a whole. Many ethical principles can be applied to these dilemmas: Reliance on Scientific Knowledge (1.01), Boundaries of Competence (1.02), Integrity (1.04), Professional and Scientific Relationships (1.05), Exploitative Relationships (1.07, a), Responsibility (2.02), Rights and Prerogatives of Clients (2.05), Maintaining Confidentiality (2.06), Maintaining Records (2.07), Disclosures (2.08), Treatment/Intervention Efficacy (2.09), Involving Clients in Planning and Consent (4.02), Promoting an Ethical Culture (7.01), Ethical Violations by Others and Risk of Harm (7.02), Avoiding False or Deceptive Statements (8.01), Conforming with Laws and Regulations (9.01), Characteristics of Responsible Research (9.02), Informed Consent (9.03), and Using Confidential Information for Didactic or Instructive Purposes (9.04), and Debriefing (9.05). These particular dilemmas were not really handled until much later when laws were passed that regulated the way human subjects could be used for research. Patients
One of the most complex, ever-changing careers is the medical field. Physicians are not only faced with medical challenges, but also with ethical ones. In “Respect for Patients, Physicians, and the Truth”, by Susan Cullen and Margaret Klein, they discuss to great extent the complicated dilemmas physicians encounter during their practice. In their publication, Cullen and Klein discuss the pros and cons of disclosing the medical diagnosis (identifying the nature or cause of the disease), and the prognosis (the end result after treating the condition). But this subject is not easily regulated nor are there guidelines to follow. One example that clearly illustrates the ambiguity of the subject is when a patient is diagnosed with a serious, life-threatening
In the realm of medical ethics, there are many topics that are debated and discussed, but there is not necessarily one clear, correct answer. One of these topics is paternalism. Many questions are bandied back and forth: is it beneficial, should it be disallowed entirely, are there instances when paternalism is good and beneficial, and the list goes on. For each of these questions there have been authors who have provided their comments. One such author is Alan Goldman. He draws a very firm line on paternalism, simply put: medical paternalism is deleterious to a patient because it intrudes on their primary rights of liberty and autonomy. This paper is going to expound upon Goldman’s viewpoint in detail, going through point by point how he presents his argument. There will then be a critique of Goldman’s viewpoint that will counter his main points. The counterpoints will show Goldman’s views on paternalism are incorrect and should not be considered valid.
Dr. TeLinde and Dr. Gey were collecting samples for reasons that could potentially bring large benefit to society, but they did not consider how the individuals who provided the sample would directly benefit. In the case of Henrietta her tissue sample ultimately led to major medical advances, but due to the fact that when the sample was taken the researchers did not give forethought to the benefits and risks that might occur; therefore, Henrietta and her family were exposed to severe loss of privacy and did not receive any form of benefits from the widespread use of her cell line. The Belmont Report (1979) states how relevant risks and benefits must be thoroughly outlined in the documents used in the informed consent process. The research was not well designed in the assessment of risks and benefits component and did not consider this
Miles, S. H. (2005). The Hippocratic oath and the ethics of medicine. Oxford: Oxford University
Southam, MD violated both the letter and spirit of such basic ethical principles as respect for persons, truth-telling, and informed consent. He ignored informed consent for the sake of the patients’ as he would say, but we can never be deductively positive. He violated the virtue of truth-telling through withholding the information of HeLa from many of his patients. Ultimately being found guilty of “unprofessionalism and deceit” is more evidence of his deplorable behavior as a professional. Evidence of his lack of respect for persons comes from Kantian deontological ethics, and his categorical imperative. Never treat a human person as means to an end, only as ends in
Denise Dudzinski, PhD, MTS, Helene Starks, PhD, MPH, Nicole White, MD, MA (2009) ETHICS IN MEDICINE. Retrieved from: http://depts.washington.edu/bioethx/topics/pad.html
Siegler, M., and W. Winslade. "Ethics in Medicine." Clinical Ethics. By A. R. Jonsen. 7th ed. N.p.:
In his essay, “The Refutation of Medical Paternalism,” Alan Goldman discusses his argument against differentiation in the roles between physicians and patients. He says the physician may act against a patient’s will in order treat the patient in their best interest. Goldman makes his whole argument around the assumption that a person’s right to decide his or her future is the most important and fundamental right, saying, “the autonomous individual is the source of those other goods he enjoys, and so is not to be sacrificed for the sake of them.” His claim is that most people agree that they are the best judges of their own self-interest and there is an innate value in the freedom to determine their own future. On these principles, Goldman starts by discussing conditions under which paternalism may be justified.
Roger Higgs, in “On Telling Patients the Truth” supplies commonly used arguments for paternalistic deception. For the purposes of this paper, paternalism will be defined as, “interference with one’s autonomy or self determination for their own good.” The first argument for paternalistic deception is founded on the idea that medicine is a technical subject where there are very few guarantees (613). Thus, Higgs supplies the argument that not only is it impossible for a patient to understand the true breadth of their diagnosis and prognosis, but additionally that medical predictions are not medical truths. The second argument for paternalistic deception comes from the belief that patients do not actually want to know the truth about their condition, and could suffer from worse health outcomes if they are told the truth (614, 615).
Steinbock, Bonnie, Alex J. London, and John D. Arras. "The Principles Approach." Ethical Issues in Modern Medicine. Contemporary Readings in Bioethics. 8th ed. New York: McGraw-Hill, 2013. 36-37. Print.
Disclosure of pertinent medical facts and alternative course of treatment should not be overlooked by the physician in the decision making process. This is very important information impacting whether that patient will go along with the recommended treatment. The right to informed consent did not become a judicial issue ...
Streamlining medical ethics to a universal system lowers the risk of abuse. To prevent abuse of power, all the goals of research must be “secondary to the well-being of the participants” (Angell 847). The investigator’s responsibility is to provide the best quality possible for the subjects even at the expense of scientific progress. Angell highlights the difference between the best possible care and the best available care. She claims that treatment of subjects by following the local standard of care when a better treatment exists is unethical.